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Triple therapy tx  

Jun 30, 2012 - 0 comments

Start therapy today in the morning.

Hepatitis C Tracker

Wondering what to do next

Mar 18, 2012 - 0 comments

We are in Tucson, just learned that the Mayo Clinic in Phoenix will not treat Gary with triple therapy tx, even after our docs at Mass General have talked to the Mayo Clinic.  This is very unnerving but it is what it is, so I am moving on.  No need to waste energy stewing about how we were treated at the Mayo Clinic.  Tomorrow is a new day!

Hepatitis C Tracker

So confused . . .

Mar 17, 2012 - 0 comments

3/16/12 UPDATE:  MGH and our Vermont Hepatologist referred us to Dr. Hugo Vargus, at the Mayo Clinic in Phoenix, AZ in December, 2011.  We decided to buy an RV and travel (bucket list style).  We ended up here for our Apt at the Mayo Clinic, only to be told, they have never treated anyone post transplant that have not transplanted at the Mayo Clinic . . .  Go figure!!!  So the dbl tx ribo/peg was stopped in December, and Gary's labs blood wise have started to rise a bit, but his liver enzymes, BUN, alk phos, and viral load have gone up . . .  VL is now 18 mil compared to 1 mil in December!  We are trying to figure out if searching for another clinic to tx him with the triple therapy is a good idea or not.  MGH is not using the triple therapy on their post transplant patients, don't know why, but they just are not....Any advise will be appreciated . . .

Tampa General

Dec 27, 2011 - 0 comments

Still in hospital, they are keeping him here against his will, but with my consent, as he is not well . . . very worried, but feel much better with him in the hospital . . .

Hepatitis C Tracker