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Oct 27, 2007 - 0 comments

Well, I had my thyroid test done this morning.  It was a little painful laying on the table, but it was padded and warm, but it only set up just a little and I had to lay my neck back across a pillow which hurt and it hurt when she ran the device over my neck and then when I stood up afterward, I was so dizzy I couldn't hardly stand or walk at all for a few minutes.  It's done and over with and of course like always, I asked for a copy of my test to take w/ me.  I come home and popped it into my pc and found out that I do have a lump on my thyroid.  As soon as the radiologist reads my test and sends the results to my doctor, which I will be calling Monday to give him the news before the hospital does, anyhow........when he gets the results he can order me medicine and yay............this may be exactly what I need to help me get back some of my life and health and help me lose the weight that I've put on this year from what I believed all along was thyroid related.  I'm sooooooooo happy that a test finally showed something that can be fixed!!!  Well, that's about it for now...........more entries later maybe..........

10/26/2007-  YOUR TOUCH IS TOO MUCH!

Oct 26, 2007 - 0 comments

Today I got to play with my grandbaby a little bit.  She's so beautiful.  She always makes me smile.   I'm getting my thyroid ultrasound done tomorrow at 11am.  They said it's an easy test and that it won't hurt.....that will be a nice change, but then I'm not sure if they even realize what hurt is to me.  They can lay on a flat hard table on their back and think ......hmmm........this is a little cold.   I do that and I think.............somebody shoot me........I get the chills all over from the cold table and my back is in severe pain from laying on a hard surface and then I get severe abdominal pain from laying flat.  I only hope it's done on one of those padded beds, that sit semi-upright, in a warm room with the warm gel, not that cold stuff they use to always use.  
Yes, I know ..........what a thing to waste so much time thinking about.  But when you experience chronic pain that can be triggered by many simple things.........which will turn that pain into a begin to think a lot about every situation you put yourself into beforehand.
Today for instance.........I had a couple friends over that I haven't seen for a while.  They both know about my condition and my pain and yet both while they were here..........patted my back hard and the huggy one hugged me a couple of times too hard.  I usually tell everyone, but the one friend I haven't seen in a long time and I didn't want to run her off with my demands of not being touched and the other friend........the huggy one who comes over once every week or so, has already been asked nicely not to do it  a couple of times and I know people forget and they just do what comes natural, but this hurts me and I want to hit people when they touch me, so they know what their touch feels like to me!  Don't get me wrong, I love my friends and I won't hit them, but how do you approach a friend and politely tell them...........your touch is too much!


Oct 24, 2007 - 8 comments

Chronic Pain


Multiple symptoms


I need suggestions!



I've read through my medical records and discovered things that were never told to me from the tests that I've had done.  
Why or how do doctors assume that these things that they never tell are nonessential?
Here's my situation:
I've sufferred from HSV-2 for 22 years, supposed unrelated to everything else you are about to read.
First I experienced periodic severe stabbing pain in my RUQ abdomen and then I displayed chronic alternating diarrhea and constipation with severe abdominal cramping along with the first symptom.
I had every GI test and no diagnosis until two years, two surgeries, numerous doctors and tests later when I finally ended up in the ER and was diagnosed with IBS.
Meds for the IBS didn't help my diarrhea/constipation from alternating, nor prevent the sharp stabbing RUQ abdominal pains which had become more frequent and lasting longer.
I was also diagnosed with 3 herniated cervical, 3 thoracic and 2 lumbar discs, which meds and physical therapy didn't help any of my symptoms.
During this process, I began to have additional symptoms:
dizziness, migranes, tremors, slurred speech, memory problems, comprehension, word recall, difficulty paying attention, heat and cold sensitivity, shocking sensations when tilting my chin down toward my chest, extreme fatigue, difficulty walking, balance, pain shooting down arms and legs, numbness and swelling of hands and feet, facial swelling, stabbing eye pain and floaters, muscle aches-spasms-weakness and morning stiffness, nausea and vomiting, ringing in my ears, severe back, neck and leg pain, bowel and bladder disfunctions, insomnia, weight gain, difficulty breathing while sleeping, lump in my throat, temporary right side paralysis, temporary neck down paralysis.
There have been so many that I have to write each new one down to keep a record of them.
Currently my main symptoms are extreme pain and ache all over especially my back and legs at night, severe swelling of my hands, feet and face and stiffness in the morning, daytime fatigue w/o sleep but night time insomnia due to pain, weakness, hoarse voice, uncontrollable irritability, battling depression, abdominal swelling after eating a small dinner my one and only meal due to pain and yet still gaining weight while on phentermine.
I've had almost every test possible done including thyroid with the exception of an LP which was never performed.
I've been diagnosed with Fibromyalgia and have been taking Lryica, Zanaflex, and Tramadol while being weaned off of Gabapentin and have had no relief of my symptoms yet.
I've seen:
(3 family practice doctors/2 neurosurgeons/2 neurologists/1 orthopedic surgeon/1 Physical Therapist/2 Pain clinics/1 allergist/1 GI/1 General Surgeon/2 Urologist/3 Gynecologists/1 cardiologist)
Had tests done at 5 different hospitals and tests included:
x-rays, ct scans, abdominal and renal ultrasound, MRI's, ekg, emg, evok potential, nerve conduction study, liver function, colonoscopy, endoscopy, upper/lower gi, barium enema, thyroid, sugar, lyme disease, numerous blood tests,  and so many other tests that I can't remember them all and I forgot to write them down, but they checked every organ, my muscles, nerves, bones, blood, skin and they did exploratory surgery,  kidney surgery and two Epidural Steroid Injections which didn't help with the pain, but made it worse.
The pain becomes a little more intense every week, medicine doesn't help and I'm not even comfortable with the Fibro diagnosis.
Do doctors ever really know what they are dealing with when they diagnose people with Fibro?
Does anyone have any other suggestions or questions that could help determine a possible solution or some assistance with the pain, other than Lyme disease information?
I'm scheduled for two more final tests next week.
A Breathing test and a thyroid ultrasound.
I posted this on the undiagnosed symptoms forum already and only received responses from one person.
Please advise anyone you may know that has had similar symptoms to post their solution if any.
I'm also curious if other people are noticing the difficulty out there in getting a prompt or accurate diagnosis, medications that work and if they are also finding information in their medical records that was never disclosed
to them by a doctor.  
Are there new illnesses on the rise that were not being informed about?
Why isn't HSV-2 called an autoimmune disease, can it affect the immune system?
Is HSV-2 the root of all my problems, since it rests in the CNS?
Do my symptoms and test results determine Fibro without an LP done to rule out an autoimmune like MS?
Are there any other possible solutions or tests?

Thank you for taking the time to read about my painful journey and I only hope that someone can shed some light on this and help me determine what's going on.

I've posted this on numerous forums in hopes that someone in one of the areas can help me.
I've also decided to keep this journal to post updates in.
I'm scheduled for my breathing test tomorrow.
I don't feel that this test will serve any purpose, as was a tilt table test I had done.
When I had asked my cardiologist why I had a tilt table test done, he stated to rule out
dehydration for the dizziness.  The funny thing is, we had this conversation prior to the
test and I told him then that I was not dehydrated.  I'd been drinking the same amount of tea
for 20 years and if he thought it was now causing me to be dehydrated for a year without dying,
then that probably isn't what's causing my dizziness.  Needless to say it wasn't and if I had known
that was the only reason for that stupid test, I would have saved myself a load of cash.
I've become very frustrated with doctors over the past 3 years because I've found that most of them are like auto repair shop that rips you off, same approach you know.  All about the money, but not for the outcome.
I'll post back as much as possible to see if anyone has any insights.