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Took My Last Shot Tonight

Mar 05, 2013 - 5 comments

It's been a tough road but I took my last shot tonight (24th). I was hit pretty good by the Incivek rash and was so weak and fatigued I couldn't do anything but lie on the couch for five months. My hemoglobin hit a low of 9.1 in Dec. and I dose reduced my Riba by one pill for 18 days. My Hgb. rose to 11 as of my last labs a month ago. As of mid-Feb. I started to feel a little better, maybe half human, and I started to cook new recipes, do work on the computer and play the guitar a little. I exercise 30 min. a day by riding a recumbent bike on the 2nd easiest level. I do not let my heart rate go above 120 BPM as I don't want to blow it up due to lack of oxygen from low Hgb.

I take my ribavirin pills until next Tuesday then I'm done and can start on the road to recovery.

First Week Off Incivek

Dec 26, 2012 - 0 comments

After Incivek

I2/17/12 was my last dose of Incivek and the first day off it I felt better and my itch went away. My sense of taste got a little better. 2nd through 4th days the itching came back with a vengeance and it was driving me crazy in spite of taking Atarax and using Fluocinonide on the rash.

On the 5th, 6th, and 7th days off Incivek the itching and the rash started to subside and I've taken a break off the Fluocinonide to see if it just goes away.

Overall, I am feeling better and the brain fog has lifted a little bit. My hemoglobin is getting low (10.2) so I am still pretty wiped out energy-wise.

It is great to be free from the tyranny of the fat and dosing schedule and to be able to go to bed early and eat better.

First Day Off Incivek

Dec 19, 2012 - 2 comments

I took my last dose of Incivek last night and feel so relieved I made it through it. The grind of it was starting to get to me and I'll bet I've read every post on the Internet about how people feel post-Incivek. I took my shot of Peg-Intron last night at 7:00 p.m.

I felt like I was hit harder by the day-after-shot side effects and was couch-ridden and huddled up in blankets all day. The good news is that at least for today the intense itching did not hit me. My itching and rash had gotten a lot worse from weeks ten through 12 but today was much better.

I just ate a taco with fresh salsa and I could actually taste it and enjoy it! Wow, it was incredible to taste food again.

I was Und. at four weeks and am awaiting my 12 week viral load test. My Hgb. dropped from 15.6 down to 10.4 over 12 weeks and my platelets are holding steady around 70 down from 156 baseline.

I will try to post in my journal how I feel in the days and weeks after Incivek.

This is how I feel most days

Dec 16, 2012 - 2 comments

This is a clip on sloths and it reminds me of how I feel on triple therapy. When they have to shave and apply cream it reminds me of me and my rash creams.