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I'm pregnant!

Aug 14, 2014 - 4 comments

A few years back, I commented that I was going to try to get pregnant. I got off of all the drugs that weren't safe during pregnancy. This included my Baclofen and the MS drug I was taking, Betaseron.

Then I got very busy, and several things happened in a year. I had an appendectomy. Then I had gall bladder surgery. Then I had a thyroidectomy! So I'm sans gall bladder, appendix, and thyroid.

With all the health issues out of the way, my body was in much better shape, and I became pregnant in May.

I had a blood clot in 2010. Well, I had done some research and visited a hematologist (before all the organ removals) and we did some testing, but was never able to find out why. All we knew is that I tested positive for the Russell anti-venom viper test. We decided that if I were to become pregnant, I would need to be on heparin. So I notified the hematologist that I was pregnant, and she ran me through all the testing again. Turns out I am a heterozygous carrier for Factor V Leiden, which means that one of my parents carries the gene. It's a weird mutation that's hard to explain - essentially my blood will clot more than the usual person.

So as soon as we found that out, I went on heparin. I take 10,000 units twice a day.

Other than that (and the awful constipation I mentioned in another thread) I've been very happy and healthy. They always say that being pregnant while having MS is wonderful, because there's no relapses. Well, I haven't had a relapse since my diagnosis - the main problem was that I had so much neurological damage that it took a long time to heal. I wasn't healthy enough to raise a child back when I was young enough. I'm 43 now. I'm chock full of estrogen, and I feel the best I've felt in years. I was feeling pretty good before I got pregnant, but I think I'm now at the top of my game. So estrogen apparently helps your brain work better, as well as preventing relapses.

So now the two objectives are to grow a healthy baby, and prevent a relapse when I give birth.

The high-risk doctor and my MS doctor think that an IV steroid will help prevent a relapse, if administered right after giving birth. I plan on breastfeeding, which should also help with estrogen levels, but I don't know if that's compatible with heparin - which I'll need to be on to prevent clotting because of the estrogen.

I'm at 16 weeks right now. I should have another ultrasound tomorrow morning, and we'll see how things are going in there. I don't feel pregnant, even though I'm showing just a little. So far they think the baby's due either at the end of January, or the beginning of February.

This is another new and strange adventure that I've started on. I figure it couldn't be any worse than anything else I've already done, and it's just another mountain to climb.

The picture here is from my 13 week ultrasound. Hard to tell what's going on - I count a head and four lumps. Looks like a teddy bear to me.

Had my thyroid removed last week.

Sep 01, 2013 - 5 comments

I went to the UTSW university hospital, which is St. Paul Hospital on August 20th for a thyroidectomy. They took out the whole thyroid, and there's now a 2 inch incision. This was a free operation, because I'm over my deductible for the year. They did a great job - no complications and almost no pain at this point. The right side has been sore. Today I haven't had to take a hydrocodone yet.

What's cool is that the lump in my throat is gone. I can swallow normally. No word on the biopsy yet. Even if it wasn't cancerous, I'm glad it's out. I'm also losing weight. I don't know if it was a thyroid imbalance, but I'm not eating any different.

Just talked to the bloodwork doc -

Jul 05, 2012 - 2 comments

She didn't see anything out of the ordinary in the bloodwork, which is great.  She wants to ask another doctor whether I'll still need low-molecular weight heparin if I do become pregnant.  But so far, so good!

Blood tests all negative!

Jun 19, 2012 - 0 comments

My recent blood tests for anti-phospholipase syndrome came back negative, so that's good news.  The doctor thinks  that certain conditions wax and wane, so this might change in the future.  She's going to check with a clotting expert to see if I still need low molecular weight heparin during pregnancy, and write me a note.