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Day 7    24.10.12

Oct 23, 2012 - 0 comments
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DAY 7

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Ablation

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Wolff-Parkinson-White syndrome

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Pain

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Heart

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Work

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head

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Chest

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Blood clots

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Cartia



It is a week since I had the ablation and I've had the best day so far.
I'm very aware now of how much better I feel when I can be with happy caring people and choose to do whatever makes me feel happy.
I find it is important for me to take my mind off discomfort and heart rhythm.
I decided again not to go to work.
Today was a beautiful sunny day and I started the day by having the neighbours 2 children over before school because their Mum had to go to work early.
We all had breakfast and I had my shower (the earliest shower time for a week ) Then I walked the children and 6 week old Blossom, in her stroller, down to the school bus stop. The children were much faster than me.
After the bus came I walked home in the Spring sunshine. Looking at gardens and hearing the birds sing i had a sense of wellbeing and happiness.
Blossom's Mummy spent the day with me. I enjoyed her company. I did some baby washing and hung it out to dry in the sun and breeze because I love doing this.
The midwife came for a pleasnt visit.
After lunch we gave Blossom a bath, dressed her up in a pretty romper and had a photo session.
Later I went for another walk  to the shop-two walks today!
The second time I noticed that i was walking faster and I didn't get out of breath. I was very pleased.
I've been fairly active today. I've had lots of sitting time in between and putting my feet up when I need to.

Physical symptoms:
My heart is still burny and a bit sore. The degree varies. When I do more it becomes more intense. I don't like the burny pain.It is hard to ignore.
I had a couple of short single pricking pains in my heart this morning. I wasn't really worried. It is more of a curiosity now. I think 'What next?'

Today I've had long periods of time without noticing my heartbeat. It still feels jumpy and fluttery if I focus on it but I'm not bothered if I can ignore it.
I'm used to missed beats and flutters from having WPW.
It is fast racing beats, lightheadeness, feeling faint, and breathlesssness that I really don't like. If that is over I will be very happy.
I haven't had the lightheadedness today, thankfully. I didn't like that. It's too like my old WPW symptoms.

If I scrunch my torso and bend my chest downward when I'm sitting my heart area feels uncomfortable.
I notice if I carry something that is a bit too heavy or I hold something up for too long. I held up some toys to make Blossom smile for the photos and I became uncomfortable in the heart area when I'd done it for a while.

Sometimes I have had minor pains in my head, briefly, but that isn't new so it may not be related to my recovery from ablation. It just triggers my fear of blood clots. This isn't new either. It has been a bit of a family ghost because my maternal grandfather died of a clot in the brain when he was younger than me. I don't dwell on it but I get a bit worried if I have an unexplained pain in my head. So far they've always gone away innocently :)

My catheter wound area has been more uncomfortable today. I noticed this morning that it was hard to find a good sitting position that didn't make it ache. It seems okay at the moment, just a minor background niggle.

I'm being mindful of what i eat. I've cut right back on sugar because it doesn't help me when I need to heal and regain energy. I'm making sure that i eat plenty of fruit and veges and heart friendly food like salmon, tuna, walnuts, oats. I am remembering to take my multi-vitamin.
I've been asked to take Cartia for 3 months and I have been doing so. I would like to eat lots of garlic, onions and other blood thinning foods instead, but I certainly don't want any clots. I've got the enteric coated type because I've had stomach ulcers in the past ( coinciding with the end of another period of time when I had to take Cartia). Hopefully I won't have any tummy trouble this time

Overall I think I've made good recovery progress now that I've reached the one week milestone. I'm thinking that i might go to work for a little while tomorrow.
My daughter-in-law has offered to come with me so that I don't have to drive on my own.

I feel very blessed with my wonderful family and friends, including the new companions I have made on this website. Thank you.

8.08pm
Wow! I've had so much more energy today and more as the day went on. I'm amazed.
I had two more walks with Blossom in the evening to help her go to sleep when her mummy was out.
I went up and down our steps at a faster pace.

Hopefully I haven't overdone it.
I will go to bed early.My chest is achy but I'm very happy.



Day 6       23.10.12

Oct 23, 2012 - 0 comments
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Day 6

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journal

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Heart

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Ablation

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auxilliary

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accessory pathway

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Wolff Parkinson White Syndrome

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Chest

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Cold

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sleep

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walk

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discomfort

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heartbeat



I felt pretty chirpy when I woke up at 7.00am this morning as i slept rather soundly although I did get up for a while at 1.30am when my husband came home from work.

But I didn't have as much energy as I thought. I called work and told them I wasn't coming in today and that I wasn't sure about tomorrow either. I felt really guilty and had to remind myself that I have just had a serious procedure on my heart and I have lots of sick leave. And I am still tired and sore.
I am a Reading Recovery teacher. I work mornings. I sit down at my job but it is very demanding intellectually and I don't feel ready to drive or have the responsibility yet. I don't really want to sit at a desk for too long either.

After breakfast I sat at the computer looking at stuff. I didn't feel energetic.
At 10.30 am I went back to bed and slept for another hour.
I felt as if I could have slept longer but I heard Blossom come in with her Mum so I got up to see them.

I had my shower then. That made me feel better.
It was cold outside and showery.
I went for my walk around to the shop with Blossom in the stroller. I was still slow although it started to rain when we were nearly home and that made me speed up a bit.
I was a little out of breath when i got back inside. My husband asked why i was huffing.

I have felt a bit light headed at times. Seems to be when I move suddenly from one positon to another.
But also sometimes just when walking around.
My heartburn has often felt like a cold burn today. I experienced this coldness in the heart area on the evening of Day 2 also.
My groin wound is still a bit uncomfortable -enough to notice but not really troubling.The bruises are now a lovely shade of black.
My chest feels a bit uncomfortable when I bend over and by the evening I find my bra uncomfortable around my chest.
My heart beat still feels fluttery often but I mostly ignore it.

Once again I enjoyed having Blossom. I played with her, changed her nappy and dressed her in a cute bear suit her aunty sent her so that I could take some photos. I looked after her for about four and a half hours.

I did some more dishes, but that and Blossom care is all I've done today.
At 7pm I thought I could quite happily go to bed but I still need to heat up some chicken soup for my tea. Looking foward to a good night's sleep.

Day 5- 22.10.12

Oct 22, 2012 - 1 comments
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day 5

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Ablation

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Heart

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Work

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family

,

Chest

,

symptom

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walking

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Hope



I have felt much better today.
I think a big part of it is being more accepting of how my body is, after getting so many helpful responses from other people on this website who have had ablations.
I am accepting that my heart and chest area is not as comfortable as it was before the ablation.
I am accepting that my heart rhythm is different to how it was pre-ablation and that i am a lot more aware of it throughout the day.
Previously I only noticed it, if my heart raced or fluttered. Now I feel aware of my chest and heart area most of the time unless i do things that distract me.

Today I tried to do things that made me feel happy and distracted me from my physical symptoms without being too tiring.
I am lucky to have extended family living in our home- my son, his partner and my six week old granddaughter. (nicknamed 'Blossom' by me)
I had lots of Blossom time today as her Mum had a hard night.
I looked after Blossom for a few hours while her Mum caught up on some sleep.
We went for a little walk to the local shop (only a few minutes walk) The stroller made a great walking aid.
I enjoyed feeling useful and I was certainly distracted from myself.

I sat down often and relaxed.
I got a stool and did a few dishes sitting at the sink. I set the timer for 10 minutes and then stopped and had a rest.
In the evening i made dinner, just a simple pasta dish, but i had a great sense of achievement.

My heart area had the burny ache again in the late afternoon and tonight.
It is 10.30pm now and I think I would have felt better if i went to bed an hour ago.

i have decided not to go back to work tomorrow. I will wait until at least a week after the ablation.
I hope to have a good sleep tonight and feel even better tomorrow.


Up to Day 5

Oct 21, 2012 - 2 comments
Tags:

day 5

,

Ablation

,

sleep

,

Pain

,

Chest

,

procedure



I am awake at 2.43am.
I often wake in the wee small hours.
I haven't slept consistently well since I had the ablation which probably doesn't help my well being.
I'm writing a bit more about my earlyablation experiences.

17.10.12 I stayed the night in hospital after the ablation because my blood pressure was very low, my heartbeat was slow and I'd had a bleed from the catheter site and 'fainted'.
The next day (18.10.12) I left the hospital with my husband and we drove to visit a friend who lives near Te Awamutu, about 30 minutes from Hamilton, where I had the ablation.
We had lunch at my friends, a slow walk around her garden and then we drove home and arrived about 5.30pm.
My leg was very sore at the catheter insertion site in my groin and I had to hold it straight out when sitting to be more comfortable. Bending it hurt.

I was welcomed by my family, admired my grandbaby and then iced a cake that my friend had made because it was my husband's birthday.
3 more family members arrived and we had dinner.
I was getting up from my chair quite often to get things. I probably overdid it but I felt happy and didn't notice my body's needs clearly.
Around 9pm I noticed that i was starting to feel shaky and at about 10pm I noticed that my heart was beating fast.
My husband checked my heart rate and called an ambulance. I was very frightened.

When the ambulance arrived they did an ECG and then took me to hospital to the ED. I had all the usuall checks, my heart rate slowed back down and blood pressure which had been high went back to normal.
They put me in an out of the way bed, my husband went home and I waited on my own until around 4.00am, unable to sleep becaue of the lights, noise and bustle in ED.
I got upset and talked to a nurse. Then a Dr came and talked to me and reassured me that i was okay.

At 5.00 am i was sent to a cardiology ward and i finally got some sleep.
I woke after about an hour with what felt like fast heartbeats.Then I had some pain in my lower roght torso. I told a nurse and went back to sleep. When it was daytime (19.10.12) I asked the nurse about the incident and she said that it was just atrial flutters. I was happy because my heart rate was continuing normal.

I only had about 2 hours sleep and then the daily routine on the ward began.
I dozed a bit more during the morning.

At lunchtime i was allowed to leave the hospital.
My husband picked me up and we went and visited his mother who lives nearby. I just relaxed on her sofa and when we went home I continued to rest. My leg was still sore and stiff.
In the late evening I had an emotional meltdown. Had a big cry on my husbands shoulder and then cried some more.
I had a good sleep that night.
I got up about 6am (my usual time) but I went back to bed and slept until about 10am.

20.10.12 In the  night i woke with achy pain over my left side around the ribcage area in my back. I woke my poor husband and asked him to rub my back in that area and after a bit it stopped hurting.
Today I rested. We had family visit and had a shared tea but I didn't do anything-just lay on the sofa.  I stayed up late watching a movie. My catheter insertion site in my groin was getting more comfortable. The bruising was darkening and spreading. I have 4 cut marks where catheters were inserted.

21.10.12
I felt tired and a bit depressed all day. I mainly lay on the sofa reading or sat at the computer browsing. My leg is moving more freely with much less pain.
I had a lot more sensation of achy burning in my chest. I had some stabbing pains in my chest in the evening. I'd had pains like that before either due to WPW or muscular skeletal so I just thought 'what next?' and had a bit of a grizzle.
I feel lots of aches all over my body. I think some of it is from being poked and prodded for many various medical procedures, some from having to lie still for so many hours on Wednesday, and being fairly inactive since.

22.10.12
I woke when my husband came to bed around 1.30pm. Then I got up for a bathroom visit and noticed tha it was a big effort. I still felt very fatigued and weak . I was fed up and turned the light on and sat up in bed for a while before getting up.
I feel, emotionally and mentally, somewhat better after reading peoples replies to my request for support and after writing this out.