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Jan 09, 2013 - 1 comments

HSG was done today.  No pain at all, though they did give me a numbing shot.  I'll get the full report in a couple of days but the dr. said my tubes are clear and that I was a model patient!

Start synthroid

Jan 08, 2013 - 0 comments

Started synthroid today.  Doctor said it could take 2-3 weeks to feel much of a change.  Will retest TSH in about 6 weeks.

Urology appt today

Aug 28, 2012 - 0 comments

Tomorrow will be 2 weeks since my abdominal myomectomy and later this morning I have a follow up with urology to see if my suprapubic catheter can be removed.  The cath was a surprise, they didn't know going in that the ~12 cm fibroid was actually growing into my bladder.  To get it out they had to cut into the bladder, so the cath is in place until it heals enough.

Recovery from surgery has been all around tougher than I thought, but the cath has been my least favorite part.  It has caused a lot of pain, a urinary candidal infection, and infection of the surrounding skin (cellulitis).  The skin is so raw, it feels like a scrape with salt rubbed into it.  Each tiny step I take or subtle shift in position can bring sharp pain to the point I cry, despite that I'm still on narcotic painkillers.  In comparison, my abdominal incision is healing well and hurts little.

The infections required two trips to the ER.  Of course these things always pick ~11 PM to flare up.  The only times I've left my house since surgery are to see dr's or ER.  This is because of the pain and because every time I take more than a few stops I get blood in my urine because that cath irritates inside my bladder.

Before it can be removed They need to do a test (not sure what it entails).  While I'm eager to be done with it, I'm so scared of the pain to get it out.  It is my understanding that it must be tugged out.  That would scare me regardless, but throw in the super irritated skin at the site and I'm REALLY scared of the pain.

While I was under for surgerythey placed a drain in me to help the incision heal.  It was super gross, but functioned well for the few days it was in to draw out fluids.  Anyone, it also had to be removed by a stiff tug by a doctor.  I was on even more painkillers then and it still hurt so much, I screamed.  I guess I have a low threshold for this kind of pain.

I'll try to keep the light at the end of the tunnel in mind, as well as the fact that even if painful, the removal should be over with quickly.  It helps to write about my anxiety to try and get it out of my system...

Post myomectomy adventure continues....

Aug 24, 2012 - 5 comments

My recent surgery to remove an out-of-control uterine fibroid resulted in some damage to my bladder.  This happened because, unbeknownst to the doctors before I was opened up, the large fibroid was growing into the bladder (as well as my intestine and abdominal wall).  The only way to get it out was to cut a small hole into my bladder, so when I came to in recovery I had a "surprise" in the form of a suprapubic catheter that I'll need for a couple of weeks.

My abdominal incision has been healing well, but that darn catheter makes life miserable!  A couple of days ago when attempting to get out of bed it hurt like crazy, and I figured I moved wrong and pulled on it.  Since then every small step I take has resulted in sharp, scratching pain in the catheter hole.  (This type of cath is higher up and is a direct hole into the bladder.)

Last night it got so bad that I couldn't stop crying and gritting my teeth.  We called the 24 on-call physician and they said I had to go to the ER.

The first thing they did at the ER was a urine analysis.  I'm not sure why, but it took 5 hours to conclude that I have a urinary candida infection, and ultimately I got sent home with fluconazole, the same prescription given for ordinary feminine yeast infections.  As long and tedious as it was, I was relived to have help for the overwhelming irritation!  I think it is already helping, and I can make some movement without wincing pain.

Tuesday is my follow up with urology and I'm with fingers crossed that the cath will be ready to come out.  That will be just about 2 weeks total with it.  I would really like to start taking short walks, etc., but until that thing is out I can't tolerate underwear, let alone going out for a stroll.

Recovering from surgery has unique challenges but at least I can see improvements every day, even if it is a "two steps forward, one step back" pattern.  Compared to chronic illness my acute pains/problems may be worse, but it is less mentally exhausting since I know there is light at the end of the tunnel.  That said, I have been very emotional and lonely with this situation, not to mention concerned for my professional self.  

I continue to hope that in the long run I'll feel better overall with the fibroid out.  It was very vascular and drawing blood from several attachments from my abdomen, and as I recovery I'm curious to see if some of my chronic problems with fatigue and pain will be alleviated.  This part of my journey was also a must if I'm ever to have a change to get pregnant, which is a strong hope and dream for me.