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Aug 26, 2008 - 2 comments

I fell at work yesterday,, I was so embarrassed.  I was bent down doing a eye chart on a cute little 6 year old, then tired to get up and my legs wouldn't couldn't push my body up.  so I fell forwards into the door, yea the cute little boy covered his mouth and started laughing... so I started laughing.. the doc came out and said,, what happened??  I said i fell i'm fine only my pride was bruised.

I'm just feeling so weak, I just pray that I can find the answers I need.


shot of steroids

Aug 21, 2008 - 1 comments

I had a shot of steroids last week for horrible left sided face pain.. it took a while but it really helped... I mean really,,, woke up and it was GONE!!!!!  this is the weirdest thing ever for me.. the pain was so very excruciating and for the shot to help so fast just has me in AWw

I also felt better this past weekend then I've had in YEARS,,,,,, I cleaned my house changed sheets did ALL laundry.. Made dinner,,,, and NO take-out... Even my husband was shocked... My pain was sooooooooo much better.  OK so that was approx 5 days ago now.. and starting yesterday started to feel bad again.. I mean the way I felt the first of last week,,, just no energy,,, pushing pushing pushing myself to keep up with everything,, at work I was just standing holding a chart waiting to call back a pt.. I felt this EXTREME SHOCKING feeling starting in my pelvic area quickly moving its way up my spine,, I almost fell,, it was like an electric shock, scared me to death not to mention the girl standing next to me.. lol
but it was gone so quickly, so strange,, so another symptom to add to my list.

So i'm wondering if in fact I have MS and hopefully I'll find out at Vanderbilt In Sept.... is this what they give for MS,,, steroids??  I honestly haven't read much about DMD's just because I haven't gotten that far yet... Steroids scare me in allot of ways... but if they help like they did for my face pain.  I'm all for it.   because it didn't only help the face pain it helped my leg numbness. my chronic pain, my fatigue,, even though it's now coming back it was sooooooo nice to have those few days.  
anyone reading this will you please give me your opinion on this?
thank you so much

legs getting weaker

May 31, 2008 - 0 comments

my legs are getting weaker, went to work today and felt sooooooo tired couldn't wait to come home. kept feeling like i would fall,  also i've been having BAD DIZZINESS.


Exhausted but pain wont let me sleep

May 26, 2008 - 0 comments

Lately it seems that my legs are getting weaker and weaker.  I cant seem to walk long distances... like in the mall. they get tooooooooo weak like I feel I will fall.  I get up in the morning with extreme pain in back and hips and when my feet touch the floor it feels like my toes are numb.  Cog Fog,,, uggggggg this is never ending it seems.  Fatigue this has been going on for 1 year off and on in the extreme.  

I just hope my next Visit with Neuro will tell me something, she expects MS,,,, which at first terrified me. but now I'm just wanting answeres and if in fact it is well then I want to start meds to help.  Is that to much to ask?????????

sometimes I wonder.