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My Friends...

Sep 22, 2009 - 2 comments

I have so much missed my friends here!  So sorry I've been away for so long!  I've been sick, and while I'm still not feeling much better I am definitely going to try to put in much more of an effort to visit more frequently.  It really is helpful to have the understanding, and support of friends going through similar life situations.  I'm certain that anyone here can understand that.

I fainted this morning...  Prior to that I had slept more than twenty-four hours!  Through medication, and everything!  I hadn't even realized until my mother woke me.  (Apparently I hadn't been answering my phone...)  I woke confused, unaware that an entire day had gone by.  I had crashed hard the day before...  With a drop in blood pressure, and vomiting.  So when I fell asleep, I guess I just didn't feel much like waking up.  Still, it was kind of odd.

It's been like this for a while now...  I honestly cannot wait for summer to come to an end.  The heat is just too much, and I'm dying for an IV.  It's silly really, who would want a needle in their arm?  I'm thirsty though, and I would just love to have some liquid going in that didn't feel inclined to come back up minutes later.  Actually, I've been debating a hospital visit for IVs, but I'd have to go through the ER because I don't have a script.  I don't really want to go that route.  It would be too much trouble for whoever I asked to take me.  Instead I guess I'll suffer through it at home.  I can mange, I have thus far.  Besides, summer is almost over.  Still, days like these make me wish for a PICC/PORT, or the appropriate medical training to start my own line.  All I want is salt water...  (Sodium Chloride).  *sigh*

I'm just about falling asleep, so I haven't much more to write at the moment.  I will try to post more often in the communities though.  I simply must be able to wake up, and use my brain.

Body Temperature Tracker

Aug 24, 2009 - 0 comments

I'm thinking of researching electronic thermometers that store multiple readings daily...  If anyone knows of an affordable one, please let me know!  :)

I did stop using this tracker for a couple of days, but started again today because it really does help me to keep organized.  Especially with the new updates.  The new updates for this tracker are awesome!  :)

Hally's Dysautonomic Body Temperature

Headache Note

Aug 15, 2009 - 0 comments

I had changed brands of Zonegran.  Unfortunately, I don't think this brand is working very well.  I think I've just entered a headache cycle.  (It seemed to be triggered by odd head movement, but I have no idea for certain.)  At any rate, I think I had a seizure too.  :(

Hally's "Oppressive Gloom" Headaches

Dysautonomia Community

Aug 09, 2009 - 2 comments

So sorry I haven't too much been very active this week in the Dysautonomia Community.  I haven't been feeling very well at all, and my brain isn't really making any sense.  Heiferly hasn't been feeling well either.

I'm posting this as a journal because I'm not even certain I'm using any sort of coherent sentence structure, since I'm only just barely conscious.  I don't really know what's going on, or what I am exactly doing.  Good night.