All Journal Entries Journals
Sort By:  

Finally a break through for me!

Sep 18, 2011 - 0 comments

I just thought that I'd write about the fact that I finally got accepted for disability. It's been a long road. I think it took me about 2 years of fighting for this on my own. I couldn't even get an attorney to represent me where I live due to there being too many disability cases going on. So I took the challenge on myself. I seriously didn't  think that I would get it, but alas I did surprisingly. I'm very proud of myself for defeating this huge task! Now that this is out of the way, I can continue on with focusing on my children and myself. Ali is doing well at his new school, Diamond is now in grade 7 and growing up way too fast and Lealand will be starting jk next year. Wow! The past decade or so has gone by really fast. It just goes to show that if you don't pay attention to your surroundings, you will miss life for sure! I just hope that other people in my situation have the same kind of luck that I've had. I put my heart and soul into this feat and beat it with no one else's help! It was and still is very stressful but it was worth every sweat and tear drop that came from my body. Now I can feel a little easier knowing I can provide my children with all of their needs and some of their wants. For anyone that is going through this huge challenge, I say good luck and keep on trucking with this, you'll get it if you work hard enough for it!

General Update

Oct 17, 2010 - 1 comments

I cannot rightly think of anything proper to name this entry but there has been a lot that has happened lately. First and foremost, I should point out the fact that Ali hasn't had any seizures for about a year and a half until this past few months intermittently. In the past two months, he has had at least 4 absent seizures and a possible grand mal. Last week at school, he had two but he has been sick with pneumonia for I don't know how long. He was put on clarithromycin for his infection but I believe it has counter acted with one or more of his other meds. His behavior has been out of whack. We have to go to see his peds neuro on Wednesday. I hope things go well for him. I am also hoping to get rid of the seizure helmet for his sake but I understand if we can't. He is on so many meds right now, it's unreal. One great aspect to all of this though is that he has been able o join baseball and now martial gym and swimming. He is doing really well in these sports!! I'm so proud of him!  I hope someday that someone, somewhere finds some sort of cure for this dreadful disease! As for the rest of my family, they're doing okay. The baby joined daycare and my daughter is now into grade 6. My health is quickly declining though. If it's not one thing one day, it's another thing on another day. Well I should go for now, my daughter needs to use this computer for a school report. I hope all of you reading are having a much better day than I am!

How can this be?

Jan 31, 2010 - 2 comments

I am writing this for my sister and myself. My sister and I have both been diagnosed with fibromyalgia, bronchial-asthma, degenerative disc disease, carpal tunnel, scoliosis for myself and lordosis for her, I have arthritis as well, we both have sciatica problems, spurs on our feet, both have been told to wear orthotics inserts in our shoes, we both have all of the problems that come with fibromyalgia, as well as issues with migraines.

I guess my question is although we are siblings, how is it that we have practically mirrored health problems? There are very little differences between both of us. This just seems very wierd to me to have almost exactly the same health problems that my sister has.

I am worried for both of our children with health issues. I know that it seems like all of the females in our family seem to eventually get these issues especially with the degenerative disc disease. My mom and grandmother both have it. Why is it that these diseases are inherited? There has to be something that one could do to avoid getting the inherited diseases. It seems to me that it probably doesn't matter how well you live your life, that you are still doomed. My sister is younger than I am and seems to have all of her stuff a lot worse than I. I have seen her in the mornings where she is not function-able at all until about a hour or two after she takes her meds. I am thankfully only like that sometimes. Although I do have issues with walking stiff most mornings depending on the weather. I am just wondering if anyone else has issues like this with their siblings and/or family. It just seems ti weird to me. I know that genetics play a lot in this role but we are two completely different people.

CFS/FMS Tracker

New Meds

Jun 18, 2009 - 1 comments

I started taking tryptophan last night. I've been on this med before but it has been about 3-4 years. The reason for this is due to no insurance and having a baby and nursing for almost 1 year. But believe me,I needed something! I hope this is all I will ever have to take cause I hate taking meds!  I have been trying to research the side effects of this medication but cannot find too much about it. Does anyone know anything about this medication? Any kind of help would be greatly appreciated!

Sleep Tracker