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Sudden Migraine & Widespread Shooting Pain Attack

Jul 13, 2013 - 1 comments
Tags:

shooting pain

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Migraines

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sudden

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age discrimination

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Fibromyalgia

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Systemic Lupus Erythematosus



So yesterday was our first wedding anniversary. We're a bit strapped for cash so celebrating it (we want to go back to Grand Marais and stay at the cabin we honeymooned at, it was so beautiful — we were looking for townhomes or condos for sale/rental either in Duluth, Two Harbors (where we were married) or Grand Marais and they actually have one of the cabins for sale, the one below where we stayed on our honeymoon for sale, but way way out of our price range for $288k, ahh, maybe one day ;) ) right on the shoreline of Lake Superior, gorgeous sunrises and sunsets, wonderful people that live or rent there, beautiful interior, it's basically heaven.

We celebrated by going out to eat and curling up on the couch together and watching favorite shows and movies together. It was nice. I got a really pretty/cute dress for the night, felt like a million bucks. When we got home, I changed into my strapless maxi dress (being 4'11" strapless maxi dresses are the only way I can work them so I can kind of gather the waistline up and all of that, hah) to lounge in.

Around 11pm, I just got broadsided with a sudden intense migraine, I don't recall ever in my life having one so bad. The pain was so intense I couldn't form a coherent thought or communicate what was going on to Rick aside from a few words and hand gestures. My hips, neck, elbows (inner), just under my collarbones were lit up in so much pain, too. I had to lie in bed, and Rick came and gave me massages where I was hurting and then let me snuggle up by him and I fell asleep. I took 800mg ibuprofen, 8mg clonazepam, 30mg temazepam, and oxcarbazepine plus 100mg extra (doctor ok'ed) topiramate. I slept solid until 7pm today, woke up much better but I'm feeling a migraine hitting again.

I'm waiting to get into a pain mgmt. clinic. I was dx'ed w/ Fibro in 1999 (at 13) and despite a re-diagnosis when diagnostic criteria changed, I don't get treated like a patient with chronic pain, I get treated like a drug seeker because I'm 27, I shouldn't have problems like this. Memo to medical community: IT DOES HAPPEN IN YOUNG PEOPLE AND IT NEEDS TO BE ADDRESSED AS THOUGH YOUNG CHRONIC PAIN SUFFERERS ARE JUST LIKE THE TYPICAL, OLDER CHRONIC PAIN SUFFERERS. WE ARE NOT PILL SEEKERS, WE NEED HELP, RELIEF. STOP PIGEONHOLING US. I am about to start filing complaints with medical boards and ethics committees for each doctor that blows me off and then I'll escalate to malpractice suits. I'm tired of it. I'm coming out blazing, I've been treated like garbage for years by doctors and now I've put my boxing gloves on. Time to fight back. I've begged for trigger point injections and been denied.

I'm also suspecting I may have SLS, though I don't want to assume or self-diagnose. I need to get into a rheumatologist and get tests run.

Health issues ahoy!

Jun 26, 2013 - 0 comments
Tags:

urgent health concerns

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anxiety/panic tracker

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chronic pain management

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fibro not taken seriously

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improper care

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negligence

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sick of feeling helpless

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sick and tired of this

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need help medically

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frustration with doctors

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low sex drive

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Dysautonomia Treatment

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genetic disorders

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Childfree by Choice

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numerous health issues

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15 years and counting

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fibrofog



My physical health has been on the decline. My fibromyalgia has flared and I'm in pain, I can't think straight, my memory is horrible (yay, fibrofog!) and I forget stupid things like when I go to get something, I forget what I went to get. I'm prescribed both Adderall IR 4 times a day and dextroamphetamine ER max 6 tablets a day, I'm able to control how I distribute the doses but cannot take more than 2 per dose every 4 hours. That's to help with my fibrofog and also my ADHD, though even taking 2 medication hardly puts a dent in either. I still have to use timers for everything or time disappears, such as when I shower and get ready in the morning, I have to set a visual timer to keep myself on track of I'll take 3 to 3½ hours to get ready.

My dysautonomia is not under control in any way right now. Going through the symptoms list on the tracker I grimace and think "yep, yep, yep, yep again, oh one I can remove, yep…" and it's been like that for 15 years. I'm only 27 and already 15 years.

I can't get a doctor to take my fibromyalgia diagnosis seriously despite still meeting the criteria, HHV-6 has been thought to be the cause/trigger, I still meet all diagnostic criteria including tender points (I meet 18/18) and I was diagnosed by a pediatric rheumatologist at Duke University Medical Center after almost 3 years of not knowing anything. I'm just told to go for walks and take 800mg ibuprofen. Ibuprofen at that dose rips my stomach up, causes mouth ulcers, kills my appetite, and isn't effective anyway. I'm tired of being blown off.

Finally, my Essure procedure was unsuccessful. Only the coil in my right fallopian tube was able to be placed, on the left, it wasn't able to be placed at all the first appointment, the second time, it was misplaced. They tried to remove it and left I think 5-6 coils remaining. I'm having horrible stabbing pelvic pain and I need to get a second opinion and have a tubal ligation or SOMETHING done to fix this. I feel violated in a way. I'm scared I'll be told nothing can be done.

I just took my Adderall and dextroamphetamine about 10mins ago, I'm getting sleepy now from it, I'm going to take a nap.

I can't stop freaking out about everything.

Anxiety Disorder NOS (Agoraphobia, GAD, OCD, etc.)

IST

Jun 23, 2013 - 1 comments
Tags:

Inappropriate Sinus Node Tachy

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IST

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Postural Tachycardia



IST episode today, registered 218bpm on heart rate monitor (had difficulty getting it to register but that's normal, even with hospital equipment at that rate). Have been slightly more frequent than normal, but not as frequent as they have been at their worst. Am able to stop them by using the Valsalva maneuver, no ER visits required, no adenosine or IST turning into VT episodes.

Some episodes are POTS like and are triggered by changes in posture and blood pressure.

Heart Rhythm Tracker