All Journal Entries Journals
Sort By:  

Oops - Way way over shot my mark

Feb 18, 2013 - 0 comments
Tags:

Weight

,

weight tracker

,

Exercise



Thanks to 6 months on Effexor, I gained 20lbs and way overshot my goal weight of 120, so now its back to the hard part, trying to take the fat belly off and get back into my clothes. Gotta lose, gotta lose. Hard to do without being able to exercise much. Hopefully in April I'll be able to swim again and burn up those calories without horrible increases in pain.

Weight Tracker

Started Effexor Taper

Jan 03, 2013 - 0 comments
Tags:

Effexor

,

taper

,

Pain

,

Weight gain



I just know its this drug that has gotten me so fat. What else could it be? Its the only med I have changed or added in almost a year! Will try something else to mitigate the pain, but the weight gain is depressing!!! And depressing my wallet. Now I need all new clothes! Ack.

I never should have gone along with the anti depressant plan in the first place. I must remember that when a Doctor says, I think you need an anti depressant or Let's try an anti depressant, or An Anti depressant might help take the edge off the pain, what they REALLY are saying is Since I haven't been able to help you, it MUST be in your head. Or that the Doc has gone through his bag of tricks and so there isn't anything to do except put one on the antidepressant so they will smile and go to sleep and quit bugging them about the pain. I have to remember this but I think this time, its going to stick and i won't be duped again.

So its out with the Effexor and from what I hear it might be a rough road to dump this drug and wean my brain off of its effects. So slowly I go.... One quarter of a pill a week until I am off it. Wish me luck and please whip me if i ever do something so stupid again.

Did it help for pain, well its hard to feel pain when you are asleep all the time. Maybe i just didn't care about it. But its still there. Bold and bad as ever.

Time for a new pain doc. And I have one in mind....

Weight Tracker

CCSVI Treatment: One year later

Feb 19, 2012 - 1 comments
Tags:

ccsvi treatment

,

one year

,

Pain

,

Fibromyalgia

,

neuropathy

,

brain fog

,

dizziness



Has it helped, yes and no. I feel my brain is sharper in that I can concentrate for longer periods of time than before. My over all fatigue is better but not as good as just after the procedure. I have slipped back a bit over the year.

Walking is worse. I am not sure clearing internal jugular blockages and blockages in the Azygos vein has much to do with walking performance. It helped in the beginning a bit, but that could have been a placebo effect. My walking has deteriorated pretty badly. I need a rollater a lot of the time and cannot walk half a mile anymore. I can do 1/4 mile with either the rollater or walking sticks. I lurch to the left and have a left foot that wants to drag.

Balance was good after the procedure but has also gone downhill over the year. I don't have as much dizziness though, just tend to tip to the left. Luckily my new smaller house has lots of walls on the left so I can lean my way were I need to go.

Pain is just as bad if not worse. I think nothing can help the fibromyalgia pain, the muscle spasms and the overall pain. I still take 25 mcg patch of fentanyl every other day, and think its effect has worn off. Tramadol works pretty well for breakthough pain. This is always worse in the winter with the changing weather.

Neuropathic pain is well controlled by gabapentin. I up my dose from 900 mg a day to 1200 when the fronts push through which is worse in the winter. I have regained most of the fine motor control in my hands though after the original numbing back on 08. I still cannot feel normally.

Over all I am in a much better place. I guess accepting the constant deterioration and not beating my self over the head has helped as has moving to a smaller more manageable house.

CCSVI treatment results fall into three categories. Those who are help a lot, those who don't feel much change and those who feel worse. I fall into the middle category.

It was worth the try though. Anything not drug related and relatively safe is fair game for me to try.

I would recommend getting tested for CCSVI and if there are blockages, get them treated! I cannot hurt and is a very safe, painless procedure. Getting excess iron out by proper drainage from the brain might make a big difference for some.

CCSVI Treatment - Successful!

Mar 02, 2011 - 4 comments
Tags:

ccsvi treatment

,

ccsvi

,

bowel

,

fatigue

,

Bladder

,

walking



I had the Liberation treatment on Feb 18th in Costa Mesa California at Pacific Interventionalists with Dr Arata.

Amazing! Just amazing how much better I feel less than a week later.
Balance way improved, walking almost normal, fatigue, the ms kind, gone. Fatigue from overdoing it, huge. LOL I have to slow down and let my body recover.

I can also hold my bladder in check and let it all go on command. Bowel function better. Eyesight improved enough to schedule an eye doctor appt and get a prescription change. Red is really red again too!

Let's see how I do in a month. The recovery is supposed to take time, but if I keep going like I have for the last week, I will be better than new in a few months. I am so hopeful. So optimistic. What a difference.

If anyone wants to read my blog, a play by play of our trip to California and the procedure check it out at http://khiba.blogspot.com/

More later. Cheers!

Multiple Sclerosis Tracker