Multiple Sclerosis Tracker Journals
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CCSVI Treatment - Successful!

Mar 02, 2011 - 4 comments
Tags:

ccsvi treatment

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ccsvi

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bowel

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fatigue

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Bladder

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walking



I had the Liberation treatment on Feb 18th in Costa Mesa California at Pacific Interventionalists with Dr Arata.

Amazing! Just amazing how much better I feel less than a week later.
Balance way improved, walking almost normal, fatigue, the ms kind, gone. Fatigue from overdoing it, huge. LOL I have to slow down and let my body recover.

I can also hold my bladder in check and let it all go on command. Bowel function better. Eyesight improved enough to schedule an eye doctor appt and get a prescription change. Red is really red again too!

Let's see how I do in a month. The recovery is supposed to take time, but if I keep going like I have for the last week, I will be better than new in a few months. I am so hopeful. So optimistic. What a difference.

If anyone wants to read my blog, a play by play of our trip to California and the procedure check it out at http://khiba.blogspot.com/

More later. Cheers!

Multiple Sclerosis Tracker

February Neuro Visit

Feb 02, 2010 - 1 comments
Tags:

neuro

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Pain

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Anxiety

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Depression

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Fibromyalgia

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wellbutrin

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sleepy

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Neurologist appointment



Had a wonderful visit with the PA at my Neuro's office yesterday. I have to go each month since I am on IViG treatment and I guess that needs monitoring.

Since I am such a wimp when it comes to drugs and usually have odd reactions to them at normal doses, I am always trying to take as little as possible. The PA said half in jest, "I am going to yell at you." She said instead of trying to reduce my valium use from 2.5 mg a day to 1.25 in an effort to get off it, that I should "be more generous with the Valium" as it does help muscle spasms and anxiety. Sheesh!

She did convince me that Valium, while addicting, really doesn't do a body any real harm as compared to some of the other drugs for spasticity and spasms, such as zanaflex, and that its OK if I take enough to reduce my pain and discomfort from seized up muscles.

Other than that, she told me to get off the Elavil, which I did a few days ago with no troubles. (Only took 5 mg at bedtime for sleep and never noticed it helped much after the first week and 10 mg knocked me out for the whole next day with a bad hangover symptom.)

She is encouraging me to give a low dose of Wellbutrin a try as I do so well with L tyrosine. Wellbutrin is OK for MS and for fibromyalgia and should help me get my depleted dopamine levels back up, give me some energy and help with this chronic depression from a chronic illness.

She also gave me the number for a chronic  illness psychologist in my area who is really good and who they work with for medications. I am certainly going to give him a call and try to come to grips with having a chronic incurable illness that has robbed me of vitality, strength and happiness. I have to get a grip and get on with my "new" life. I am obviously not doing it well on my own no matter how positive an attitude I try to keep up.

Today I am so sleepy. The weather has taken a turn for the worse with rain and cloudy dark skys and a damp cold temperature to go along with the rest of it. I probably will not be able to go for a walk for the next few days. Rats. Guess I  will have to lift weights and do stretching and pilates.

Over all I feel Ok but don't seem to be perking up much. Maybe its the depression or maybe its because the IVig has worn off. I go next week for another round of treatments.

Multiple Sclerosis Tracker

Trying Elavil for low mood

Nov 22, 2009 - 0 comments
Tags:

5-HTP

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multiple sclerosis tracker

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mood



While I work on rebuilding seratonin in my brain with 5 HTP I am taking 5 mg elavil at bedtime.

Multiple Sclerosis Tracker

Yay! IVIG got approved

Nov 10, 2009 - 0 comments
Tags:

treatment

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Hope

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multiple sclerosis tracker

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infusion center

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IVIg



I start treatment on Monday Nov 16 and go Tuesday, Thursday and Friday for infusions. I should be there 8:30 to 12:30 or longer depending on how I do.

Man I hope this treatment helps me get back on my feet before Thanksgiving so I can go RVing with some friends over the Holiday!

I have learned not to get my hopes up too high though. Its going to be a long week sitting with IV in my arm, but the gals there are so fun and very wonderful and everyone talks and is friendly.

They will pre-medicate me with Tylenol, Hydroxyzine cause I cannot take Benedryl, and have all the other possible issues covered. Plus it is right next to the Neuro's office so I will feel pretty safe. :)

Please please let this help. If not my next stop would be a Neurosurgeon to see if there is some disk stuff that can be fixed to let me have some feeling back in my arms and legs. Its hard to walk only from memory.

Multiple Sclerosis Tracker