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a little better

Jul 11, 2009 - 0 comments

Things were a little better today.  We were camping at a music festival, and had to leave the concert a little early to head to camp.  The heat and all of the walking started to get to me, so I went back to camp to take a nap.  That seemed to help, and was able to enjoy the rest of the day.   This isn't normal for me.  Before all of these symptoms started 9 months ago, I would have been able to enjoy a whole day outside in the sun listening to music.  That is one of my fav. things.

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Jul 10, 2009 - 0 comments

Still having symptoms, but pushing through

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Day 6 When will this give!

Jul 09, 2009 - 0 comments

I just can't get a break from this.  My pain is only mild to moderate today.  I can deal with that!  But the fatigue and muscle weakness is still awful.  And My brain doesn't want to sleep at night.  

My skin is really itchy and my face hurts today and is burning and red.  That is a new one!  I sware everytime I have a major flare up I get a new symptom along with it.  

My eyes keep going really blurry and then back in focus.  My brain is all over the place and I think straight or focus on a single task.  That is not like me.

I am getting a lot of L'hermittes today.  It's happened multiple times today.  And that does hurt.

We are going away this weekend, so I really hope that his lets up.

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flare day 5

Jul 08, 2009 - 0 comments

Symptoms seem to be dieing down a little bit, but are still so bothersome.  The fatigue is still horrible.  Both sleepiness, and muscle fatigue and weakness in my arms, hands, legs and feet.  My throat feels tight and it's a little hard to swollow.  

Trying to push through....

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