May 03, 2008
My treatment should start next week – just a little earlier. The nurse ordered the medication yesterday. Also yesterday I attended what the Center calls “THE TEACHING”. When I walked into the room I halfway expected - Jesus and one or two of his Disciples would be there - in white doctor coats - sitting around the table doing that wine and food thing - what a crazy name for an --- ORIENTATION Group!?!?!!!!
Anyway, we received much information from the Nurse about the ‘dos and don’ts of treatment and an insulated bag with all ‘the stuff’ we’ll need to get started. (I felt as if I was going off to summer camp or something.) We were assured that our assigned nurse would always be available to us (during office hours of course) and to call whenever we needed help with or had questions about anything. The nurse seemed to sincerely care about and understand what we were getting ready to go through. That was comforting.
I think a month ago someone posted on the forum a ‘shopping list’ of sorts - for what may be needed while on treatment. After ‘The Teaching”, I went to the store to purchase some of the items – but for some reason it became an overwhelming experience walking up aisle after aisle looking for everything.
So today I went on line to 'drugstore.com' and ordered everything I might need (I forgot to order the back scratcher) – it was much easier – and cheaper – no PA tax and free shipping. The customer reviews of the products were also helpful.
Since I live alone I would rather have what I MAY need vs trying to run out to get it in a time of need.
When the order arrives, I plan to put my ‘stuff’ into a RED ‘care box’ right next to my bed just in case I FORGET where I put it. I’m learning as I go along here.
Nervous – yes –I take a lot of deep breaths – my therapist wants me to reach out more – and say what? I need help and I am afraid my life is getting ready to morph into something I won’t recognize? – I'm trying to reach out and it's helpful - especially from the folks on my friends list – I have to remember (and believe) in the long term this is going to be good for me – it’s better than the alternative. At least I have most of what I need to deal with the side effects – IF I have any – have to keep it positive….