Apr 12, 2014
Went to the hospital at 0700hrs friday 21st March 2014.
Honestly all i remember is the anaesthetist popping the Arterial line in and then 10 days later, I remember my partner coming in to see me. I was discharged the next day.
So most of what i know about the operation and what was to follow came from my sister telling me what happened and what the doctors told me the day i was discharged.
So I went into theater at 1330hrs. The surgeon were unable to find any microadenoma so sent off a section to pathology. This returned a result of ACTH cell Hyperplasia. As my Cortisol levels over the past 3 months had increased exponentially it was decided to remove most of the gland and get rid of the hyperplasia cells. The only part of the gland left was a small part that attaches to the stalk leading to the Hypothalamus.
During surgery I had a CSF leak which was repaired with a fat graft from my right thigh.
Surgery was completed at 1730hrs and i was transferred to recovery.
In recovery I started vomiting and they decided to keep me in recovery till I stopped.
Also 1 hr post surgery i developed Diabetes Insipidus. I was passing 900ml of urine every 20 minutes. They were throwing fluids into me as fast as i passed them out.
Finally at 2130 hrs they transferred me to the high dependency unit. Here my sister and my partner had been waiting for me since 1700hrs.
The next day apparently I had severe left sided weakness and my right pupil wasn't responding to light. I went down for a CAT scan. Apparently I had swelling around the brain, possibly caused by the over load of fluids pumped into me over night. This resolved on its own over the next 24 hrs. Although my right pupil remained sluggish for the next 5 days.
I had Hyponatremia and Hyperkalaemia off and on over the next week as they tried to Balance my electrolytes.
I was in the high dependency unit for 5 days. During this time i was visited by the Occupational Therapist and a speech pathologist but i cant remember what they said or did.
I was also seen by an Ophthalmologist who did a range of tests and arranged for more follow up tests two weeks later. that appointment is in 2 days.
I spent 11 days all up in hospital ( a bit longer than i was expecting). I had an indwelling catheter in for 9 days as they measured my fluid intake and output. I was putting out 8 + litres a day. That's now decreased to 4 1/2 litres a day and is much more managable. I am on Desmopressin twice a day.
That was 12 days ago.
I have been home 12 days now . The last two days i have been sooooooo fatigued I cant believe how bad it is. I have body aches everywhere, I am Nauseous and i have mild diarrhoea.
I am so glad I have an appointment with the Endocrinologist in 2 days cos I hate feeling this bad !!!
It has to get better than this !!!
Anyway thats enough for now....yep im tired out again :)