Jul 19, 2009
: Female, 66, ashland - MT, member since Jul 2009
At this time of my life I am desperate. I have M.S.(not terrible, many symptoms but managable thru my life). a stent in my heart (1999 doing well), M.S. induced epilepsy - aura only), fibromyalgia, and osteoarthritis that has flared badly in the last 5 to 6 years. Dur ... [More] ing that time I was taking oxcarbazepine and didn't realize that it was washing out my blood sodium and causing other terrible things to happen to me. I know many people tolerate it well but I didn't.
I was doing well before that. Now I need a right knee and left shoulder replacement. My left foot is Charcot foot but no diabetes - neuropathy due to M.S. I have two vertebrae fused to sacrum (7/07) and much pain from that area. The surgeon left in two damaged vertebrae because he said he could not do them all. I have a lump on left side of surgical site and my left hip is beginning to hurt.
.I can't sleep long before stiffness and pain wake me up, yet I can only lay on my back because the surgical site hurts when I turn and my hips hurt. I go from bed to chair to bed at night. I am in a power chair but can (and do) walk - my back begins to cramp when I walk too long
I have had MRI's of spine and two days ago had a difficult experience with myleogram. They show deterioration of discs but Neurosurgeon unwlling to operate. Recommending pain pump. My left hip and the bump on my back have not been x-rayed.
My husband and I are raising our 11 year old great-granddaughter whom we love dearly and she needs me for a while yet. My husband is 69 and in fairly good health. We live on a ranch on our Indian reservation -130 miles from the specialists and large hospitals.
I want to live and I think I can handle surgeries but no one wants to touch me. I feel I need some second opinions. I can't just give in to the pain and die. I have too much to live for. If anyone has any ideas about how to help me - even to slow down the osteoarthritis I would appreciate it. [Less]
Interests: Senior Health, High Blood Pressure/Hypertension, fibromyalgia, LONGEVITY, Women's Health, Heart Disease, back pain, pain, Chronic Pain, cholesterol, menopause ... [More] , autoimmune disease, multiple sclerosis, epilepsy, Diet and Nutrition, Heart Health, Weight Mana, genealogy, Running Trail ride business [Less]