procrit only brought hb up to 9, nutrophils at 500, platets at 118. Doc want to reduce doseage to half for riba & peg for 2 weeks. I'm still rolling this around. Maybe I will do it for a couple days and see how I feel.
I had to take a couple of reductions during tx (1200 down to 1000), both after reaching UND. It really did make a difference and although I didn't want to do it at the time I was in the 9's and we don't have procrit here. As soon as my Hb came back up I went back to full dose. I sat at 10 most of the time and in the last 8 weeks dropped down to 9 again, and was reduced to 1000 again. As soon at got back to 10 decided to up my dose to 1200 again for a final last dash for the finish line, without Doc's consent. It was a bad bad move, made me drop way down again very quickly. So, what can go down very quickly can also come up very quickly. I don't know what your riba dose is but I would comment that halving it seems too radical. It is common to cycle riba up and down throughout tx but generally only at 200 mgs a time.
I was also advised to halve my Peg on 2 occasions, but I didn't do it and survived. Those neuts have a way of jumping around and you may find they come back up naturally. When we were in 'reduction' mode they were monitoring my bloods weekly and so I had a pact with myself that if the neuts didn't come back on their own, I would have followed Doctor's orders.
Not advising you what to do as I'm no Doc, just sharing my personal experience. It's your choice...
Thanks Epi - it helps to hear other's experiences. One visit I'm happy with my dr. then another visit I'm second guessing his decision. I've on been on procrit 4 wks this time and it did bring me up to 9 from 8.7 so I don't know why he won't order me another round. The other thing is, he actually told me to break my riba in half. It's not scored - he should order another prescription. He refuses to give me the helper drug for my low nutrophills. But, I know what you mean about the neuts going up & down - like a roller coaster.
I'm on 800 mg a day of the Riba, 400 in morn, 400 in evening. I would refuse (i did before) but I feel my hb going down. So, I thought maybe I would do it until I feel it going up, heck with the neuts - that one I will take my chances. Labs in 2 wks.
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