May 20, 2008
Monday was the follow-up visit to the MRI I had last Wenesday with the Neuro-optho. The MS doctor that ordered the MRI looked me over the same day and had fairly good news. The spot that we have been looking at in my spinal cord was unchanged. There is no growth to the spot in the last 4 months. We have made a change to my medication to help combat the pain. I have a follow-up visit in three months. That news was good to get, really. I was thankful that there were no major changes.
The Optho-Neuro visit was a bit differnt. Part of me thinks I let myself expect too much, we all know that feeling I think at one time or another. The best thing that came from the visit was I got my patch taken off temporarily as a priosm was put on my glasses so now I can see only one not two. That I am very thankful. I was given two tests to identify my the signals going back to the brain from what I see. Those tests were somewhat below average.
we then looked at the MRI. There it was noted that the blood supply to the 6th nerve in my eye was distorted. The artery (I guess) started in one picture showed fine but as we looked through the the slides it became quite distorted that was noted to be the cause of the double vision. the doctor was very perplexed at this. he said that this was one problem that he could see in my eye. The second problem came from the fact my eye is moving in toward my nose. This was being caused possibly from two things. An injury from long ago (like a hit in the head) or perhaps a tumor growing that is pushing it that way. he asked me to drop the MRI to a fellow radiologist that he knew. On my way home I dropped it off to the new reader. My optho said he would get back to me today, tuesday, after the two had discussed it. This morning I await that call. I give him until 10am for that call then I call him. That in a nutshell is the visit.
Here are my feelings on this visit and a few of my observations and feelings. I have had 12 MRI's in the last two and a half years. Albeit that some were follow up to the fusions I had, I have a hard time that more answers are not there. We all look for more concrete answers. In the problems I have, I see it like this. If muscles and nerve pain are your intial complaints, and you have a problem in your eye that seems to be muscle breakdown letting you eye drift toward your nose, and nerve / signal reaction be off would you not think all of this is related? The doctors are so quick to say that these two issues are unrelated. I have a hard time getting that. My nubness in my hands, feet , arms , and legs. The pain that is associated with these are all unrelated? Believe me I am no expert but I cannot swallow so well that these things are not "feeding" off of each other. I guess the bottom line is that the limbo feeling that I still have has made me somewhat bitter, and once again the quest for answers has lead to nothing for sure.
Any comments would be greatly appreciated. God Bless you all.