Aug 27, 2009
Well, it's a few days short of three months since I started Plaquenil to treat Sjogren's. So far, no big improvement. I have 4 hours here, and maybe a day there that all the swelling goes down, the exhaustion lets up, and I start to feel like myself (aside from passing out), but generally no improvement. In fact, many days, the swelling has been much worse than in the past. Some days my glands and eyelids swell so bad it looks like I'm having an allergic reaction, and yet I have absolutely no allergies to anything. I've started having a lot of tightness and swelling behind my breastbone, about where the thymus is located, so now I'm concerned about that. Not going back to the rheumatologist until the Plaquenil has had six months to work, so I can't really ask him about the thymus. I know the Plaquenil takes time to have its full effect, but surely the swelling shouldn't be getting worse. And of course, the rare good hours make it even harder when the swelling comes back!