Sep 24, 2009
Well, I debated on whether or not to post this on thyroid or just what so I've decided on a journal entry in hopes that it will get to everyone.
As many of you know, I had finally decided to kick my pcp to the curb because he was doing me more damage than good. I found a new pcp, who I've heard wonderful things about. I had my first appointment with him yesterday afternoon and I must say --- I was totally and completely surprised and more than satisfied with the outcome. I can't help wondering if I have finally found my "Dr McDreamy"; although I've found that I have a long way to go yet ----
This doctor spent more time with me in this one appointment than my previous pcp has spent with me in the last 10 appointments...........
The good news is that I have totally right all along that there is more going on than thyroid issues and that contrary to what my former pcp has been telling me, there IS something wrong with me and it's not all in my head!!
I had spent the evening prior to this appointment making copies of all my lab reports for the past 2 yrs, along with a list of all the doctors I have been sent to, who sent me to them, why and the outcome(s). It was well worth the time. Because of time constraints, patients are asked to keep each visit limited to 3 concerns........I actually did better than that and kept mine to 2 concerns, but it was great plenty to get me started on the next leg of my journey.
The first issue I addressed was the pounding heart that caused my former pcp to declare "there's nothing wrong with you"!! Well, I beg to differ. In Dec when I had the echocardiogram it was discovered that I have a leaky heart valve but the cardiologist was not concerned about it at that time because it was very slight and he could not hear anything when he listened to my heart. We did schedule another echo for a year - which comes up in January. Well, in the course of the exam yesterday, I was telling the doctor about this echo/leaky valve thing. Upon examination, he asked if the cardiologist had happened to mention *which* valve was leaking and I said "no". He then asked if the cardiologist had mentioned anything about the aorta. I said "no, why". He then proceeded to tell me that he can hear a murmur there. Since heart problems run rampant in my family, he was very concerned about it. Well, he want to put me in another 24 hr holter monitor, so I will go in on Tues to get that put on and it will come off on Wed. I'm not looking forward to that because remembering when I had it before, it's totally miserable!!
The other issue I addressed with him was my continuing fatigue. I told him that my thyroid levels are about right now, and I no longer feel that is causing the fatigue. He totally agreed with me. We looked at the lab reports I had taken with me and I pointed out a few things that had concerned me but had not been followed up on by my former pcp. I had to be sort of careful because this doctor USED to be an associate in the office of my former pcp and I do not know what their current relationship is.
Anyway, I do have pernicious anemia and take the b12 shots AND I've recently learned that I'm deficient in vitamin D. He was not wholly trusting of the results from the “D” test I had done so he ordered another vitamin D from my lab. I also asked for another calcium since my last one a couple yrs ago was very "high normal" --- so yes, that's on the lab order, along with metabolic and lipid panels , CBC, another B12 test (which my former pcp said was "okay" since it was 600+ at last test - "normal" range is 200-1100).
He looked at the CRP that was done last year and because it was high (also never followed up on), he recommended that I start taking CoQ10 in an effort to bring it down. AND in view of the b12 and d deficiencies, he has recommended a "micronutrient" test to see if I'm deficient in anything else. That test will cover vitamins - A, b1, b2, b3, b6, b12, c, d, biotin, folate pantothenate; minerals - calcium, magnesium, zinc, copper; amino acids - asparagine, glutamine serine; antioxidants - alpha lipoic acid, CoQ10, cysteine, glutathione, selenium, vitamin e; carbohydrate metabolism - chromium, fructose sensitivity, glucose-insulin metabolism; Fatty acids - oleic acid; metabolites - choline, inositol and carnitine; it also tests for antioxidant function. This test tells whether the body is actually using the nutrients.
I had also mentioned a high ferritin on a test from a couple of years ago (again never followed up on) and he said that ferritin levels have to do with the way the body uses sugar and insulin and it’s often a factor in diabetics, something else my former pcp wouldn’t consider…….
I had also taken with me a record that I had been keeping for some time with my blood sugar – most concerned about fasting levels. In this record, many of my fasting blood sugars were high (over 100 – some as high as 120). I had tried to show this record to my former pcp last year and he refused to even look at it because my glucose tolerance test came back “normal” AND he said that the glucose meters you buy in the drugstores are “so unreliable, they shouldn’t even be sold”… the doctor yesterday, did not question the meter I used or anything – he looked at the results and said “we need to follow up on this and keep a watch on it”……what a difference!!
Anyway, I know that I have a long way to go to get through all of this and it’s going to take some time, but at least I’m not being “brushed off” or even worse than that - being told “there’s nothing wrong with you”……………he didn’t look at me like I had totally gone off my rocker or am a hypochondriac or anything like that --- how refreshing. I finally feel like I have someone who will not only help dig to the bottom of “pit”, but will be there to help me climb back out again too…
Maybe I’ll be able to stop feeling like, well, the “barnyard stuff” yet.