All Journal Entries Journals

List of Testing, Lab Work, and Specialists for new neurologist.

Oct 16, 2009 - 4 comments

Testing, Lab Work, Specialists

February 22, 2008 – Brain MRI – report: “most likely to be multiple sclerosis”

February 27, 2008 – Optometrist re: blurred vison, floaters; new rx, no evidence of issue

March 12, 2008 – Visit with neurologist; inconclusive

April  08, 2008 – New neurologist, orders further testing

April 10, 2008 – Visit PCP re: bladder pains, tingling, urgency.  Urinalysis, culture, clear.

April 11, 2008 - Lumbar Puncture, spinal headache.  LP, blood work,  essentially normal

April 15, 2008 – Blood Patch, resolved spinal headache.

April 18, 2008 – Visit with Opthalmologist, no evidence of issue, VFT  5/14 good.

April 25, 2008 – MRI of cervical, thoracic and lumbar spine

May 27, 2008 – EEG, results normal

June 17, 2008 – Brain MRI w/wo contrast, report again “most likely to be ms”

August 11, 2008 – Visit MS Specialist ordered MRA head and neck (9/2/08), normal, thyroid antibodies test, normal.

September 24, 2008 - Urogynecologist

November 19, 2008 – NCV, right arm, normal

November 21, 2008 – Urodynamic testing, relatively normal, scheduled pelvic MRI

November 25, 2008 – Pelvic MRI, unremarkable, some probable nabothian cysts

December 11, 2008 – Neuro-opthalmologist, 4 hours of testing and exam, dry eyes, mild Meibomian gland dysfunction, noted lesion on pons.

Testing, Lab Work, Specialists

January 20, 2009 – VEP, normal both eyes

January 27, 2009 – Dentist, suggested Trigeminal Neuralgia, no clear evidence dental source of pain in  upper left jaw.

February 3, 2009 – ED lower right abdominal pain, blood work, CT abdomen, tests clear

February 4 2009 – PCP ordered CBC, agreed I have Trigeminal Neuralgia, rx tegretol with flare in May.

March 16 2009 – Rheumatologist, blood work mostly negative, ruled out Sjogren's Syndrome, elevated ESR and CRP

April 6, 2009 – Cardiologist, refuted neurologist’s theory from history & exam;  no evidence of SVID or risk factors.  EKG normal, Echo bubble study (4/14) negative for cardiac shunting

April 30, 2009 – 3T MRIs of brain, cervical, and thoracic spine.

May 4, 2009 – Vestibular PT, weekly for 7 weeks; reduced dizziness.

May 14, 2009 – Oto-neurologist, testing negative, ordered more

May 29, 2009 – Audiology and Vestibular Testing; hearing good, acoustic reflex study suggested diffuse cochlear disease, both ears.

September 1, 2009 – Gastroenterologist, possible neuropathic source of increasing constipation, ordered colonoscopy for November 18, 2009.

September 28 – PCP ordered neck x-rays, 7 views, normal.  Concern over C4 hemangioma  being source of pain, tightness,  neck and upper chest

Other bloodwork throughout this period, re-checking ANA, Vitamin D, thyroid, and more.

Post a Comment
405614 tn?1329144114
by Fluffysmom, Oct 16, 2009
What do you think, will this be helpful?  I'm still trying to condense my 6 page Timeline, and came up with this in the process.

I'd appreciate comments, thanks!


559187 tn?1330782856
by Sarahsmom46, Oct 16, 2009
What if you put all your testing together like 2009 and list all the tests done under the year instead of by the exact date?  You could also put all the testing that was normal together and put the abonormal tests together.  I see them do that in medical journals.  

Just a thought.

739070 tn?1338603402
by rendean, Oct 16, 2009
My opinion would be to group your testing by year as Julie suggested , without the specific dates, for the copy you give the neurologist.  You don't want to appear to be doctor shopping. You keep the  full llisting for your reference and present the condensed version to the doc.

Abnormal results could be highlighted by bold face type and/or different color ink.

I think the information provided is good just keep it simple. If something is of interest to the doc, then it's up to them to ask more questions. Kind of like a resume. You put the name of the job (ailment) and what it involved (treatment and results) in short form and let the one reading it be intrigued enough to ask questions.

My two cents worth.


405614 tn?1329144114
by Fluffysmom, Oct 16, 2009
Julie, Ren,

Thanks for you ideas.  I gave them a try, and it ended up looking muddled, since the tests were so varied, the specialists, everything.  I think that doctors like things ordered, even chronological, especially with bullet points, lol.  Thats what my roommate in health care says, and Dr. Y. sure responded well when I actually gave her a list of the four things that were bothering me the most, using bullet points.  I'd mentioned them all in person each visit, and in my Timeline, but when she saw those bullet points, it got results.  

Sigh, I have had to doctor shop, to try to find answers. Actually, I don't see it as doctor shopping, just moving on when its obvious that no answers are coming, and seeking specialists for specific testing and their knowledge.

Dr. C. has my records, knows how things ended with Dr. Y., and accepted me as a patient.  Many of my test results are normal.  Dr. C. will make up his own mind.  I simply want to give him a fairly concise listing of what tests I've already had done, and have results for, should he be interested.  His opinion of results may be different; the EEG results might suggest something that the person looking for evidence of seizures didn't recognize.

His assistant told me that he loves to solve difficult cases when I told her mine was complex.

I've pared my 6 page Timeline down to 5 pages.  I'll give him a copy for his research, and have a copy for myself if he asks questions.

I still might just make a list of the symptoms I've had over the past almost two years.  I don't want to bury him in paper, but I want to communicate what I've been through without him having to read all 5 pages of my Timeline.  

my large jar of pennies, ha ha ha! thats a lot of two cents...

I need to get some sleep

Post a Comment