Oct 31, 2009
It has been a while since i have been here. The surgery for the TC's (which they call them Meningeal Cysts now in my case) was scheduled for Aug 20th of this year. I decided not to have surgery because I just did not feel healthy enough even though my Dr gave clearance for me to have the surgery.
Not long following this decision I began getting sick. Having COPD and getting sick causes alarm for me! Because I get sicker than those who do not have lung issues. After a few emergency trips and my oxygen being low the last trip to the ER they admitted me for 24 hours to watch me and see if I needed to be there. They kept me 6 days! I was on antibiotics,nebulizer treatments and alot of Prednisone!! From there they sent me home with oxygen, I have been on oxygen24/7 since!This has been for several weeks.I am on 3ltrs. I was on 2 ltrs but that was not enough. I have a nurse who comes 2 times a week and an aide who comes 2 times to asst me with baths along with a provider to help me with the house and showers the other days.
I see the Pulmonologist for the first time Nov. 9.They have diagnosed me with having Pulmonary Fibrosis and possible Emphysema. I have COPD. They were saying I had CHF (congestive heart failure) but they ruled that out after my echocardiogram.
They have scheduled me also for a sleep study in Nov. They believe I may have sleep apnea.
So this is whats been happening with me. My next journal I will talk more about my emotions around all this and getting use to the changes and the help I need.