Nov 09, 2009
I have been trying to get to the bottom of my breathing problems and still have not made much head way. I want to give up and just accept things are always going to be this way, but then out of nowhere the urge to keep digging for answers comes back.
I developed mild asthma about 6 years ago. I never had an asthma attack for wheezing or any of the usual asthma connected symptoms, but they still diagnosed me with asthma becaue I had a positive reaction to methocholene, a drug they use for testing for asthma. The lung doctor put me on one asthma drug after another and the result with all of them is that they helped but only with marginal improvement. The only thing that has really helped was steroids and they only helped while I was on them. So 3 years ago my lung doc and I had a conversation about continuing asthma meds. I stopped them and nothing dramatic happened. I noticed my breathing was getting a little worse over time, but nothing dramatic.
So, last June I had a full pulmonary function test and that showed a dramatic and significant decrease in lung function. Another test a month ago showed a further decrease. A lung doctor I saw, someone new to me, sent me to a neuro to see if it was a a neuromuscular probelm. He concluded that the breathing problems were MS related even though my MS neuro said that it wasn't MS and to dig deeper. I have now been sent back to my lung doctor for her to figure out and well, we can't see to talk to each other because of playing the ol phone tag game.
I am most discouraged right now that I can't even get a simple flu shot noneless the H1N1 vaccination. I am discouraged about not knowing what is at the root of this problem. But I am not feeling defeated. I will keep plugging away to find the answer and more importantly some type of treatment that will help get things back under control.