All Journal Entries Journals
Previous | Next

PLEASE READ MY STORY

Jun 18, 2008 - 1 comments
Tags:

SUSIE



14057?1213813238
HELLO WELL IM NEW HERE AND EXCITED TO MAYBE GET TO KNOW MORE ABOUT MY FAMILY HISTORY AND TO BE A LIL MORE UNDERSTANDING ON SOME OF THE RECENT DETAILS THAT HAPPENED TO MY SISTER THAT HAS JUST PASSED AWAY IN FEBRUARY OF 2008 IN MY HOUSE.  MY SISTER WAS MENTALLY CHALLENGED AND WAS THE BEST PUREST SWEETEST PERSON ANYONE COULD TRULY EVER KNOW. FULL OF LIFE AND HAD SO MANY COMPLICATIONS THAT WE ALL READY KNEW OF AND DEALT WITH EVERYDAY AS IF SHE HAD NOT A CARE IN THE WORLD. SHE JUST TRULY LOVED LIFE!  SHE WAS AN ANGEL!!!

MY SISTER SUSIE WAS DIAGNOSED WITH MENTALY RETARDATION WHEN SHE WAS BORN IN 1979 AS WELL AS MY BROTHER WHICH WAS BORN IN 1971 HE IS OLDER THAN HER AND I.  HE HAS PROBLEMS OF HIS OWN BUT NOT AS SEVERE AS SUSAN THAT WE CURRENTLY KNOW OF.  THE ONLY OTHER PROBLEM WE KNEW OF FOR MY SISTER "BEFORE" HER DEATH WAS HER CONGENITAL STENOSIS OF HER AIRWAY.  IN 1999 DR'S NON  STOP WOULD DIAGNOSE HER WITH MENTAL RETARDATION AND ASTHMA.  WHICH WAS NOT THE CASE ---- SHE FINALLY GOT LUCKY AND SEEN A WONDEFUL DR NAMED DR OROUKE IN LIMA OH AN ENT SPECIALIST AND SAID GET HER TO CINCINNATI CHILDRENS HOSP IMMEDIATELY SHE HAS MAYB 2 WEEKS LEFT TO LIVE. HER AIRWAY WAS CLOSING IT WAS THE SIZE OF A PIN.  SO ANYWAYS SUSIE HAD TO HAVE TRACHS AND T-TUBE STINTS AND FINALLY JUST HAVE IT STRETCHED EVERY 3 MONTHS.  I TOOK CARE OF HER CAUSE MY PARENTS HAVE BEEN THROUGH SO MUCH IN THERE LIVES SO I HAD HER AND MY FOUR BABIES EVERYTHING WAS FINE TO BE HONEST SUSIE ALWAYS SEEMED OVER THE LAST 2 YEARS TO HAVE AN ANNOYING COUGH SHE COULD NOT RID OF AND BE OUT OF BREATH ALOT BUT HER PHYSICIAN REASURED US SHE WAS FINE AND IT WAS JUST HER WITH HER AIRWAY.  

FINALLY WE COME TO FEB 21ST OF 2008 SUSIE STARTED BREATHING AS IF SHE WAS HYPERVENTILATING AND WOULD NOT GO TO BED I TRIED TO CALM HER DOWN I THOUGHT SHE WAS PANNICKING I SAID SUSE JUST LIE DOWN SHE GOT WORSE QUICKLY IT LOOKED AS IF HER EYES WERE GOING TO BULGED OUT I RAN UPSTAIRS TO CALL 911 AND CAME DOWN TO SEE HER THROWN ON THE FLOOR VERY STIFF DROOL COMING OUT OF HER MOUTH AND BREATHING BUT NOT TRULY GETTING AIR IN. THE EMTS GOT THERE WITHIN 2-3 MINS...WE ARE RIGHT ACROSS THE STREET FROM THEM.  THE GOT HER IN THE AMBULANCE AND I GOT THE KIDS READY AND WENT TO THE HOSP MERCY FAIRFIELD HERE IN HAMILTON.  I GOTTHERE THE DR SAID OH SHES JUST FINE SHE JUST HAD MUCUS LODGED IN HER AIRWAY THE SUCTIONED IT OUT AND SHES FINE. I LOOKED AT SUSE AND THOUGHT TO MYSELF SHE LOOKS WAY FREAKED OUT HER EYES WERE GLOSSED OVER AND SHE DID NOT LOOK RIGHT AND I WAS SO HAPPY SHE WAS OK I WAS SCARED TO DEATH I TRUSTED THE DR AND WE LEFT . SUSIE COULD BARELY GET OUT OF THE BED AND THEY MADE US WALK TO THE DOOR DID NOT EVEN USE A WHEELCHAIR....SO WE LEAVE THINKING SHES OK.

TWO DAYS GO BY SHES COUGHING A LIL MORE AND SEEMED WAY OUT OF SORTS ALL DAY MOODY EDGING SWEATS JUST LIKE THE OTHER NIGHT...STARTED BREATHING CRAZY AGAIN..I SAID COME ON SIS CALM DOWN UR OK U JUST SAW THE DR MEMBER AND THEN SHE WENT IN THE BATHROOM TO COUGH UP WHAT WE THOUGHT WAS MUCOUS...AND THAT WAS THE LAST TIME SUSIE WAS REALLY ALIVE SHE CAME OUT BARELYW ALKING AND I LOOKED UP AT HER AND IT WAS LIKE SHE WAS HAVING A SEIZURE SHE WAS POINTING AT ME IT LOOKED LIKE AND SHAKING THEN I RAN TO HER AND SHE FLUNGED INTO MY ARMS AND IM CRYING AND YELLING AT HER AND SHE LOOKED TO BE BREATHING BUT VERY SHALLOW I CALLED 911 HER EYES LOOKED CRAZY LIKE SHE WAS NOT HERE ANYMORE ...THEY GOT TO THE HOUSE IT TOOK A LIL LONGER THIS TIME AND DIFFERENT CREW THEY PANICKED IT LOOKED LIKE DUE TO SHE WAS 30-40 BPM HER BREATHS AND THEY SEEMED TO NOT BE ABLE TO GET THE TUBE IN HER THROAT SO THEY WERE IN THE HOUSE FOR 10 MINS. I GUESS THIS WHOLE TIME SUSAN WAS NOT GETTING ANY OXYGEN OF ANY KIND.  I DID NOT KNOW THIS THEY GOT HER TO THE AMBULANCE AND SHE WAS ALREADY IN RESPIRATORY DISTRESS SHE THEN WENT INTO CARDIAC ARREST...THE COULD NOT GET A NORMAL RYTHYM GOING SHE DEFIB...THEY GAVE HER EPHIPDRINE AND EVERYTHING BUT COULD NOT STABLIZE HER AT ALL FROM 5:25---TO 6:28 6:28 IS WHEN THEY FINALLY GAVE HER CPR AND THATS WHEN THEY ARRIVED AT THE HOSP WE LIVE TEN MINS AWAY. THEY HAD TO PULL OVER I GUESS TO GET HER GOING ...THE HOSP GOT HER STABILIZED FINALLY BUT BLOOD PRESSURE WAS EXTREMELY HIGH.  AMONG HER PROFOUND COMA THAT WAS THE ISSUE WE HAD SO I THOUGHT AT THIS POINT HER EYES WERE OPEN BUT IT WAS HAUNTING TO LOOK AT..DRS SAID THEY DOUBT SHE WOULD EVER WAKE UP BUT MY WHOLE THOUGHT WAS "WHAT CAUSED ALL THIS...WHY DID SHE GET RELEASED ON THE 21ST...I WAS ANGRY AND CONFUSED" SO I DID GET MEDICAL REPORTS BUT FOR SOME REASON THEY NEVER GIVE ME ALL OF THEM BUT I HAVE ENOUGH OF THEM. ON THE 21ST HER BLOOD PRESSURE WAS 151/101 AND HER PULSE WAS 110 AND ALSO RESP WAS 22 WHICH IS PRETTY NORMAL BUT FOR SOMEONE THAT WAS ADMITTED BY AMBULANCE WITH RESPIRATORY DISTRESS AND HISTORY OF AIRWAY YOUW OULD THINK HER VITALS WERE ALARMING DUE TO SHE CANT REALLY TELL YOU PAIN OR ANYTHING IS WRONG.  

ANYWAYS MEDICAL RECORDS SHOW ME THAT MY POOR SISTER HAD LONG QT SYDROME ALONG WITH HYPOPLASTIC CORONARY ARTERY CONGENITAL STENOSIS OF RESP TRACT LARYNX TRACHEA MAJOR BRONCHI  LEFT ANTERIOR FASCICULAR BLOCK LOW VOLTAGE QRS  HER PR INTERVAL WAS 152MS QRS DURATION 100MS QT/QTc 418/525 MS PRT AXES WERE 76---54---66 NOT SURE WHAT ALL THIS MEANS JUST LOOKS REALLY BAD IT SEEMS I WANDER IF HER HEART WAS THE REASON FOR ALL THIS...I HAVE A PROBLEM WITH THE CAUSE OF DEATH THE CORONER PUT ON HER DEATH CERTIFICATE: HE PUT PNEUMONIA...WHICH ALL OVER IT STATES SHE HAD NONE ON ANY DAYS JUST IT WAS RAPID SET AND COULD HAVE BEEN ASPIRATED..BUT COULDNT HEART FAILURE CAUSE LIQUID IN THE LUNGS.  THEY ALSO STATE THE TUBE FROM THE VENILATOR MAY HAVE NOT BEEN IN RIGHT FROM THE WAY HER BODY WOULD FLING FORWARD EVERYTIME IT WOULD BREATH FOR HER. SO CONFUSED BUT THERE ARE PROBLEMS WITH MY FATHER TOO  CORONARY ARTERY DISEASE AND HE HAD 8 BYPASSES AND HIS RIGH HEART IS DEAD ALONG WITH 2 HEART ATTACKS AND HIS FATHER DIED FROM HEART DISEASE BUT HES PRIVATE AND DOES NOT SHARE MUCH SO I HAVE TO TAKE WHAT I HEAR AT MOMENTS...SO I FEEL CONFUSED AND WORRIED FOR MY KIDS AS WELL. I HAVE HAD ALOT OF SYPTOMS MYSELF BUT THEY COME AND GO...

CHEST PAIN NUMBING IN MY HANDS AND FEET SHORTNESS OF BREATH VERY VERY TIRED HEADACHES VERY SOAR MUSCLE PAIN MAINLY IN MY LEGS AND I FEEL MY HEART BEAT OFF SOME TIMES HARD THEN RACING AND THEN SLOW I PASS OUT TOO. DIZZY NASUEAS...MY DR JUST DID SOME BLOOD WORK CAUSE I HAVE HAD LOW POTTASIUM BEFORE AND HE ALSO DID AN ECG HOLTER MONITOR BUT JUNE 24TH IS MY NEXT APPT WHEN I SEE THE RESULTS OF THOSE.  I JUST WONDER WILL THE HEART MONITOR PICK UP THOSE UNIQUE PROBLEMS..?

THANKS FOR READING AND SORRY IF ITS HARD TO FOLLOW STILL PRETTY SAD CONFUSED AND DONT KNW WHAT TO DO FROM HERE...

Comments
Post a Comment
531935 tn?1214922984
by Murph74, Jun 18, 2008
The best thing for you to do is be positive. I can't understand what you are going through, but that is why they make these web sites. Too help each other in need at certain times. I suffer from chiari malformation. I have had 2 brain operations and many other procedures and I am still in pain for 8 years now. The other thing is to make sure you see as many doctors as you can although each one has there own opinion. Two of them might have the same and than you can move on with getting better. Beast of luck to you . One other thing is have your children checked when your doctor OK's it. I am up to my 40th doctor in 8 years so opinions matter.

Post a Comment