All Journal Entries Journals
Previous | Next

Wait..what? I have Hashi-what and maybe cancer where?!

Dec 12, 2009 - 10 comments
Tags:

papillary

,

Thyroid Cancer

,

Hashimoto

,

PCOS Thyroid

,

RAI 131 radioactive iodine

,

total thyroidectomy



Well, it's been crazy the last few months. In and out of doctors offices, 18 blood labs, scans, four FNA, a couple ultrasounds...

The doctor: "Hey you have Hashimoto's..."
Me: "Is that a Godzilla disease? wait...what?"

The doctor:...Oh and maybe you have PCOS too...
Me:PC...whaaat?

The doctor: You have a multinodular goiter on your isthmus...
Me: wait ...isn't that a land/water thing...how did a canal, or strip of land get in my thyroid?

The doctor: Oh, and well Miss you might have a 25% chance of cancer, you decide if you want to have the surgery... you can
have a Thyroidectomy, or a partial removal...or no surgery at all...your choice...your gamble.

Me:OK...uhm...ugh.. (Jeopardy music plays) Uhmm...ughhh...well... I choose: Total Thyroidectomy surgery for $200! DONE!!

The doctor: Here is your Synthroid ...
Me:Yum? :D

Me:Are we done yet doc?

The doctor: Well...

No.

POOF! Shape of a cancer patient! (Doctors are very magical...with words they can transform your world and how you are defined.)

You had a 1 inch cancer in your thyroid.

So much for endocrinologists prediction of a 25% chance of cancer, glad he is not the weather man!


Me: Ohh Neat! I had cancer, and it was gone before I knew it was there!

Me: HAHA cancer! Kiss my big white ***!
_____________________________________________________________________________________________

Soon, RAI 131 (dun dun dun) *enter dramatic music*

I'm still scared of the RAI. I've done my research, I know the why's behind the need for it, the "what-if's" are what keep me on the brink of avoiding it. A little disappointed I won't actually "glow" in the dark. Oh you think I didn't check, but I did! Much to my disappointment I will not be glowing, but I am still holding out hope for super powers and a cape!

Went back to my General practitioner, and POOF it's for sure, cysts all over my ovaries. PCOS is another label I slap on my medical resume. I find out in a week or two, if I have cervical or uterine cancer.

Recommendation: hysterectomy

I wonder if they will expect to do it before, or after the RAI, if it is cancer. My doctor looked confused when I asked if I could keep my battered ovaries. He said, "Yes, of course." I did a happy dance, and he was lost. I explained, I am done with my baby house, a hysterectomy means no need for birth control! I explained, "I'm old, not dead Doc!" He got a chuckle. Funny how doctors love to laugh at corny jokes.

I have found myself getting lonely here, and there. One friend was kind enough to explain talking to me that I made them feel awkward. So they avoid me. *sigh* I've known my friend for many, many years...heck friends I have known since I was a child, seem so distant now. I'm not contagious!

SHOUTING: "You can run, but you can't hide! Soon I will have my super powers, my cape, and I will find you friends!" :P

I don't feel sad, I don't feel damaged...I feel blessed. I have spent so many years sick, with doctors treating my symptoms, but never diagnosing me. I'm stronger now, I'm healed...I'm blessed, even if I am losing my hair :P

Fat, tired and balding...I am turning into my friends grandpa!! Sexy! Oh yeahhhhhhhhhhhh!!

PCOS leaves so many women struggling to have babies. After four pregnancies (one miscarriage), I have three beautiful children, and a amazing granddaughter. Again, I feel blessed!

My husband survived a different kind of cancer, 10 years now...again I am blessed!!!

I always joke I got every recessive gene in the genetic bucket...guess I got some bad ones, and a whole lot of luck on the side. :D

Comments
Post a Comment
158939 tn?1274915197
by utahmomma, Dec 12, 2009
You make me smile!

And, yeah, your "glow" may not be seen to normal humans but those of us who have graduated from RAI-U will see it.

PCOS is pretty common with those of us with thyroid problems.  Keep an eye out for Type II diabetes now too!  :-/

Hugs to you and thanks for making me smile!

Utah

Avatar universal
by mommyjamieof2, Dec 12, 2009
You have been through alot fear I am on the same track hypo and pcos waiting to make sure no cancer stupid doctors think getting results is no big deal.  

Sorry to hear about the friends I have issues with friends and family with these problems as well they think its in my head
or something..

I am in Utah  also so you have a friend not to far away :)

1118230 tn?1270064091
by LisafromFL, Dec 16, 2009
LOL

   Newbie here...what is PCOS?  What I am coming up with I am sure is NOT what it is!  heehee
   I have also had some different medical issue the last few years and my friends, too, think I am over reacting or making it up.  Hard to deal with some days.  The fact that I am having surgery soon was a shock to them.  When I was sick off and on from December until March they were tired of hearing me say I didn't feel good.  Turned out to be a double-sized gall bladder with over 500 stones!  Yikes!
   Was diagnosed with a prolacinoma 8 years ago.  Yep, I told them, you were right: it really WAS all in my head!
   The worst part was when I finally got pregnant for the second time when my daughter was 12.  Took 10 years.  Then came the blow when the doc told us that the baby had Trisomy 18, which is incompatible with life.   Devastating.  They thought I wouldn't carry him past 5 or 6 months, but I was blessed to be his mom and carry him for 8 1/2!  Unfortunately he was stillborn in 2003.  No one knew what to say to me, so they all avoided me.  It was so isolating, especially at a time when I needed them.
   I now have a different set of friends who have as warped a sense of humor as I do.  We are having fun joking about my TT.  (And it really is better to laugh about it than to cry!)

1118230 tn?1270064091
by LisafromFL, Dec 16, 2009
Oh, yeah, my new nickname, coined today, is: Tumoropolis.  They told me they could just hear a question about me on Jeopardy.  Sick...just plain sick.  Hahahahaha

1058524 tn?1285187240
by Justi_has_a_booboo, Dec 16, 2009
HAHAHA! That's funny! When I went back to have my steristrips removed the doctor came at me and I stopped him. I was all serious and asked if he was going to turn me into a human pez dispenser! At Thanksgiving...my brother in law looked at me and reached for my head and said I want CANDY! To laugh is way more fun :D

ha-ha Alex would crap himself!

1058524 tn?1285187240
by Justi_has_a_booboo, Dec 16, 2009
Sorry it took me longer to respond to you here LOL it was dinner time and little ones etc...here goes :D

Newbie here...what is PCOS?
Polycycstic Ovarian Syndrome - just goggle it on here or the net. :D I'm still new too!

   I have also had some different medical issue the last few years and my friends, too, think I am over reacting or making it up.  Hard to deal with some days.  The fact that I am having surgery soon was a shock to them.  When I was sick off and on from December until March they were tired of hearing me say I didn't feel good.  
I had my gallbladder out 7 years ago, interesting. You're not the first with Hashi's to tell me they have had issues with gallstones. Sorry, I totally understand feeling sick and feeling misunderstood. Getthing a diagnoses was scary, but very nice to be validated and know WHY I felt so bad and that I really wasn't losing my mind or a big sissy.


   Was diagnosed with a prolacinoma 8 years ago.  Yep, I told them, you were right: it really WAS all in my head!
   The worst part was when I finally got pregnant for the second time when my daughter was 12.  Took 10 years.  Then came the blow when the doc told us that the baby had Trisomy 18, which is incompatible with life.   Devastating.  They thought I wouldn't carry him past 5 or 6 months, but I was blessed to be his mom and carry him for 8 1/2!  Unfortunately he was stillborn in 2003.  No one knew what to say to me, so they all avoided me.  It was so isolating, especially at a time when I needed them.

I'm so sorry that happened to you. My last pregnancy I went in for my first ultra sound. The doctor was all happy, doing his job, showing me the baby on the ultra sound monitor. Then he looked very serious...turned the monitor away from me. Started calling for his assistant, and got "the wand" for an extra special look. He then informed me my babies heart had stopped beating and had died. I cannot imagine losing my baby at 8.5 months. You are a true survivor and super mommy. God bless you and your little angel. It's also no fun to be in such pain and have everyone be too afraid to talk to you. Isolation hurts almost as much as the loss. Hugs to you Lisa

I now have a different set of friends who have as warped a sense of humor as I do.  We are having fun joking about my TT.  (And it really is better to laugh about it than to cry!)
My husband survived cancer and has a 6+ inch scar on his chest and another smaller one from a biopsy and catheter for the chemo. So we really did talk about being pirates for Halloween, but I had my surgery after. We have also agreed that if we are ever mugged, we shall show our scars to try to scare the attacker into thinking we are pretty bad a$$!

1118230 tn?1270064091
by LisafromFL, Dec 19, 2009
Hahahaha  Bad A$$ Lumpy and Tumoropolis  Look out forum, here we come!

   What really stunk after losing Christopher was that my husband was sent on a remote assignment to Korea for a year.  We were able to push back his date to leave until just after the one year anniversary of Christopher's angel date.  We tried to get pregnant while he was home on leave, which was successful, but then I miscarried at 8 1/2 weeks, at Christmas.  After that, I was done; I just couldn't go through any of it again.  And I had turned 40 that summer.  Looking back, I'm surprised that I didn't go on anxiety/depression medication.  But with a 12 year old daughter at the time, I just stayed focused on her.  And I made it through.
   Now I am dealing with this.  I figure if I made it through the rest I can conquer this and press on.  Besides, what other choice is there?  lol
   I have a question about weight loss.  Do you know if it is easier to lose weight after having the TT?  I am overweight, have been gaining about 10-15 pounds a year, the last several years, and would LOVE to turn the tide to the other direction.  Any insight on this?  Or have you heard from others on this?

1058524 tn?1285187240
by Justi_has_a_booboo, Dec 19, 2009
Haha! Tumoropolis is about to change and soon you will have lumpy jr!
I'm so sorry, that must have been pure hell on Earth for you. Thank God you have your beautiful daughter to keep you moving, when most would have simply fallen.

Wait until you get a grand baby. OH MY GOSH! Yeah, I have a granddaughter she will be 1 year in Jan. 2010. She will thank you for staying healthy so you get to be the worlds best grandma!

OMG Are we related some how LOL! Where have you been? I have been doing the same 10-15 lbs a year. I hate to say it, but I was 221 pounds. It stinks being heavy and not knowing why. My mother in law was shocked to see how little I actually ate. Any how it was nice to know it wasn't me, it was my body being sick that was making the weight gain happen. I was placed on Synthroid and lost 17lbs in the first couple weeks after my TT. I was eating MORE than I did before the TT because I actually felt hungry! It was awesome! Once they found I had a tumor buddy in there, the doc took my Synthroid...I cried... and put me on Cytomel 2xs a day. I lost about 4lbs in the last 3 weeks. It slowed down a lot, but the inspiring part for me, is I am not trying to lose weight.

I am serious about being hungry, the day after my TT I was stalking the room service lady to get me off clear liquids and let me have an nice egg breakfast. As far as inches, all of my clothes are loose as heck on me! I'm too excited to get done with the RAI and back on the good Synthroid! I'm hoping the weight continues to drop and with exercise I can finally get the waist line back that I lost after my gallbladder was removed.  



1118230 tn?1270064091
by LisafromFL, Dec 19, 2009
What's a waistline?

   LOL  I just realized that it's after midnight and I have to get up before 6:00.  I'd better get a move on.  Thanks for the quick responses.  You have a great way of writing; you should write a book.  And, yes, I am being serious.
   I embroidered on a shirt the other day with my embroidery machine.  Wanted to have something fun to wear at the hospital:  "Hashimoto's - such a pain in the neck"  Might just wear it to my appointment on Tuesday.  :)  Geesh, I am not making any sense right now, many random thoughts.  I'd better get into bed before I hit my head on the keyboard!

1058524 tn?1285187240
by Justi_has_a_booboo, Dec 19, 2009
HAHA OH MY GOSH DO IT!! WEAR THE SHIRT!! PICTURES!!


And on that note

Goodnight to all in Tumoropolis!

Post a Comment