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Doc Visit 1/7/10

Jan 08, 2010 - 2 comments
Tags:

sleep

,

Chiari

,

visit

,

sleep study

,

results



Yesterday, the doc gave me the results of my sleep study. She said I had moderate to severe snoring which disturbed my sleep. I told her I highly doubt that was a norm. When I told my husband what she said, he laughed. He stays up for at least 2 hours after I go to bed, and he's in the room with me the whole time. He would know, for sure, if i snored.
Anyways, she said that I also had low REM cycles, and interruptions in my EKG. I asked if I have signs of sleep apnea, and she said no... to which I responded, that was the only thing I cared about, I don't put any stock in the rest of their results. For goodness sakes, I was forced to sleep on my back, which I never do... I was hooked up to a ton of wires, and I was awaken many times in the night to readjust a node. Nothing about that night accurately depicted my typical sleeping habits or environment.
She also granted me another MRI, this one of my neck. I requested it so I can put out of my mind the worries that I may have Syringomyelia. I'd rather know for sure than wait and it come up later down the road that I should have been tested. I love my neurologist, but knowing that he is not a Chiari's expert, I know that I can be proactive and be an active participant in my health care, myself. Which is why I had the MRI ordered :)

Comments
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1123704 tn?1267669949
by Alex265, Jan 08, 2010
Good for you, we really have to self advocate.
When I first saw a neurologist his opinion was that all my symptoms were coincidental and that I was born with the chiari and one didn't have anything to do with the other, he had a reason/idea for all my symptoms. Thank God I decided to seek a second opinion, having surgery in two and a half weeks, if I had let it go who knows how much longer I'd be suffering, as it is I've reached the end of my rope.
alex

620923 tn?1452915648
by selmaS, Jan 08, 2010
Just a quick thought...u can develop a syrinx in ur thoracic or lumbar spine as well...although they r more comon in the cervical spine.

A MRI of the complete spine is best as u rule out a syrinx and tethered cord and ne Disk issues.

U r lucky to have a PCP that is assisting u to get a better look at ur spine.

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