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Desperately seeking answers/hope for living with Chiari

May 14, 2015 - 0 comments
Tags:

chiari malformation

,

syringomyelia

,

seeking answers

,

Chiari

,

Pain

,

decompression

,

Insomnia



Hi everyone!  I've been reading other patients stories for awhile now, but this is my first entry.  I have Arnold Chiari Malformation, Syringomyelia, Scoliosis, and recently added Degenerated Disc Disease. I had the decompression surgery in August 2014.  About 6 months post op all of my symptoms started to return.  I have these horrible constant headaches daily, my left leg is always numb and has a burning feeling, memory loss, insomnia, and terrible back pain.  I've tried physical therapy and different medications with no relief. I forgot to mention the loud ringing sound in my head that never goes away.  My NS moved out of state and my neurologist referred me to a pain management doctor.  To me it sounds like those doctors would just mask the pain instead of trying to figure out the actual issue and work on that first.  I keep getting referred to all kind of doctors, and am still waiting for any sign of hope to feel even a little better.  This is effecting my quality of life and I'm miserable.  Is there anyone on here that has a similar story or positive inspiration for me?  Any advice would be greatly appreciated!

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