May 14, 2015
Hi everyone! I've been reading other patients stories for awhile now, but this is my first entry. I have Arnold Chiari Malformation, Syringomyelia, Scoliosis, and recently added Degenerated Disc Disease. I had the decompression surgery in August 2014. About 6 months post op all of my symptoms started to return. I have these horrible constant headaches daily, my left leg is always numb and has a burning feeling, memory loss, insomnia, and terrible back pain. I've tried physical therapy and different medications with no relief. I forgot to mention the loud ringing sound in my head that never goes away. My NS moved out of state and my neurologist referred me to a pain management doctor. To me it sounds like those doctors would just mask the pain instead of trying to figure out the actual issue and work on that first. I keep getting referred to all kind of doctors, and am still waiting for any sign of hope to feel even a little better. This is effecting my quality of life and I'm miserable. Is there anyone on here that has a similar story or positive inspiration for me? Any advice would be greatly appreciated!