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Going back to MD Anderson

Jan 19, 2010 - 4 comments

I haven't been very active on the message board as I have been having a hard time. I finished two weeks of daily radiation treatments last tuesday. Because my WBC has been so low, I have not had any chemo sine 1/4 but I have been really tired. Met with my local oncologist and he is very converned as my bilirubin test reslts have gone up from 10 last week to 15 this week. I have only had 1 treatment of the new chemo combo, so we don't know if it will work. My local oncologist has recommended I go back to MD Anderson and see what they recommend and I have an appt. for 1/25 and hopefully we can find something that will work.

I am working on getting my papers will and other documents. It is hard to prepare for the possibility that I may die sooner than I plan. Don't get me wrong, I am not giving up!!!!!!!! I just want to make sure everything is in order and easy for my family if I do die sooner than later. I do not feel like I am dying...just feel tired and weak. I am still able to work part time and thankfully my job is secure and my boss is great about the time I take off.

Will update the journal when I know something.

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349465 tn?1289081764
by Teresa222, Jan 19, 2010
You will be in my thoughts and prayers. Please post and let us know what you find out at M.D. Anderson.

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by bohan54, Jan 19, 2010
There is a comfort knowing that you have made some decisions easier for your family.  Hoping your energy returns bit by bit each day.  

107366 tn?1305680375
by gah_70, Jan 20, 2010
I'll be thinking about you as you travel back and hopefully get to try something new that will make a difference.  I think any of us who have had to deal with this know that the realities of life are things we must confront, and talking about them doesn't mean we are being morbid.  In fact, I think it's quite healthy to talk about this stuff with people who aren't going to become uncomfortable at the mention of planning for end of life.  It's great being able to work in a place with folks who are great about taking time off, and taking care of your medical needs.  It was that very same thing that allowed me to continue working the entire 4 1/2 years since I was diagnosed.  I wouldn't trade them for a million dollars....well, okay, the thought might cross my mind.  :)  

Looking forward to hearing what they have for you.  

Btw, my new doctor there is Dr. Coleman.  Don't know a thing about him, but I'll meet him in April.


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by wannasmile63, Jan 20, 2010
All you ladies are so inspiring how you do confront the realities of life. I'm not sure if any of you saw the show "The mummy diaries", but it was a british show following the lives of a group of women with different types of cancer, and at different stages. It basically was about how their cancer affected the whole family, especially the children, and how to prepare for certain outcomes. There was a lady who made regular visits to the families to help the children cope, and offer suggestions to make the whole cancer rollercoaster a little bit easier for all involved. I especially liked the idea of memory boxes, where the mothers would put special things in with notes attached, and different ideas that she wanted her family to know about, should she not be there on certain occassions. I know myself, losing my mum  to cancer, and having so many health problems myself, that I have got so many questions I wish she had told me about herself, and now I'll never know. I know when you are so sick, and having treatments that you really sometimes just can't cope physically doing those things, but when you do feel ok, and have enough strength, I think you would be doing your loved ones something that is priceless. May god bless you all, and keep you strong.

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