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Clinically Isolated Syndrome

Jul 08, 2008 - 0 comments
Tags:

syndrome

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clinically isolated syndrome

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negative

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MRI

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results

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Pain

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stress

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symptom

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eyes

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brain

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daughter

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syndromes

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isolated



On the 4th of July, the day before my daughters 3rd birthday, I was diagnosed with clinically isolated syndrome.  I really wasn't expecting to get a diagnosis just results from latest MRI and VEP.
MRI showed no change and VEP was negative.


I had my mum with me, she seemed pleased with the diagnosis but was not quite sure what it was just not the letters 'MS'. I was doing OK until I read I was high risk for developing MS within the next few years as I have lesions on my brain and my spine.

I have my Lumbar puncture date,28th of July and I will be tested for Lyme Disease that day too.
The only good thing happening lately is I've lost over a stone with a very healthy diet (apart from the booze) and a little help from stress!


I have the same problems with my spine but I am continuing with my yoga which helps. I have been having very regular eye twitches for a while now and recently developed lots of muscle spasms in my legs,arm and face. They are mild but so frequent, every 30 seconds or so, they are hard to ignore. That along with my moods and feeling very tired seem to be my only symptoms to date, but its hard to tell what is related and whats not.

Will write after my lumbar puncture.

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