Oct 22, 2015
I officially joined MedHelp in June of 2008. I was on a Medical leave for about two years and returned early 2015. I've just had to time to begin searching for some of the wonderful Chronic Pain Societies and Associations that I often referenced. It saddened me to find that the first one I searched has ceased operating. They were so helpful. They worked diligently to make needed changes for those of us that live with Chronic Pain and the challenges it brings to our lives.
I found the letter they left on their page inspiring - and sad - and a call to arms for all of us that reside in this hostile pain management environment. I've copied it in-part and it reads:
"With deep regret and heavy hearts, we sadly inform you that due to irreparable economic circumstances, APF must cease to exist, effective immediately. ...... APF hopes to be able to transfer content from various information, education, and support programs to other organizations so that you may continue to benefit from the value these programs have provided to thousands of individuals and families across the country.
Your personal experiences in living with pain and seeking compassion, empathy and medical care – often against the odds -- have driven our efforts over these many years. This includes enactment of key provisions of the National Pain Care Policy Act in the Health Reform Bill that led to a landmark report issued in 2011 by the Institutes of Medicine. This report documents the shocking numbers of US citizens that live with pain and calls for immediate changes to address gaps in care. Despite this, the current climate towards improving the plight of people with pain in the US continues to be precarious and hostile.
As you unfortunately know, the need for public outcry around the needs of Americans struggling with pain conditions is greater today than ever before in light of the multi-front assault occurring daily on our right to dignified care. Misguided state and federal policies are impeding access to appropriate and reasonable medical care for people struggling with pain, and deterring even the most compassionate medical providers from treating anyone with pain conditions.
It is therefore critical that each of you raise your voices singularly and together to demand the care you deserve. It is only by continuing to demand attention to the ever-worsening barriers and unacceptable suffering that change will occur.
Elected officials, policy makers, and the media need to keep hearing from each and every one of you so they are not allowed to walk away from the consequences of this over-looked public health and medical problem. ....."
I'll continue to search the other Pain Societies and Associations that we relied on through 2013. I'll post links as I locate them - and make certain they are still operational.