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MY NEUROLOGIST SACKED ME AS HIS PATIENT

Mar 23, 2010 - 11 comments

I WAITED PATIENTLY FOR TESTS TO BE ARRANGED BY MY NEUROLOGIST SO PATIENT WAS I THAT 5 MONTHS WENT BY BEFORE I MADE A COMPLAINT ABOUT THE WAIT... TURNS OUT MY NEUROLOGIST HADN'T ARRANGED ANY OF THE TREATMENTS HE HAD TOLD ME HE WOULD!  I GOT A LETTER ON 4TH MARCH TO SAY APPOINTMENTS HAD BEEN MADE FOR ME TO GO FOR LUMBAR PUNCTURE AND BLOOD TESTS (THESE SHOULD HAVE BEEN DONE LAST SEPTEMBER AFTER MY APPOINTMENT WITH NEURO THEY ACTUALLY GOT DONE IN MARCH). RECEIVED PHONE CALL FROM NEURO HE WAS RUDE AND OBSTRUCTIVE (ALWAYS FOUND HIM PLEASANT AT MY APPOINTMENTS) BUT WHEN HE SPOKE TO ME THIS MONDAY HE WOULDN'T GIVE ME LP RESULTS...SAID HE DID NOT HAVE MY NOTES, HE WOULD NOT ANSWER QUERIES I HAD RE: TESTS AND OTHER APPOINTMENTS HE WAS ARRANGING AND HIS PARTING WORDS WERE 'I SUGGEST YOU GET ANOTHER REFERRAL- GOODBYE'. ANGRY IS NOT THE WAY TO DESCRIBE HOW I'M FEELING. DO YOU THINK HE KNEW I HAD PUT A COMPLAINT IN ABOUT HIM AND THE DELAY I HAD EXPERIENCED AND HE RANG LOOKING FOR A FIGHT? I THINK SO. I SAW MY GP TODAY AND TOLD HIM ALL THIS, HE KNOWS OF A MOVEMENT DISORDERS NEURO AT ANOTHER HOSPITAL AND HAS REFERED ME TO HIM , HE SAID OTHER NEURO MAYBE DID ME A FAVOUR THIS CHAP IS VERY INTERESTED IN MYOCLONUS SO MAYBE NOW I WILL GET SOME ANSWERS!

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559187 tn?1330782856
by Sarahsmom46, Mar 23, 2010
Hi Suz,

It takes a lot of nerve for a doctor to tell a patient to go find someone else for no good reason even if he had heard of your complaint before. You had a justifiable reason for complaining. No one should be expected to wait that long for testing.

I agree with your general physician in moving on. Good riddens to this creep who calls himself a doctor. He obvioulsly wasn't interested in helping you, so go to someone who is.  I'll bet you have a better exam and follow-up with this new neuro.  Would there be any possibility that your general doctor can help with making the appointment or even writing a letter you can take with you so the new neuro knows someone else is watching out for you?  It has helped me in the past with new doctores.

I hope you don't have to wait much longer to get the results of your tests. Heck, you should have been able to get the results right when you talked to that doctor. His saying he didn't have your notes is BS.  Anyway, move on and know that not all neuros are made equally.  Some are really good, some are really bad and the rest are just mediocre at best.  

Take care.

Julie

147426 tn?1317265632
by Quixotic1, Mar 23, 2010
Man, you are well rid of this yahoo, even if it is by his own hand!  He cannot handle even the merest hint of criticism or of being shown that he has been negligent.  Wow, a fragile and angry ego.  Perhaps his life is falling apart - who knows and who cares?  He had no right to treat you rudely.

His actions were arrogant and rude and unprofessional, but he does has a right to dismiss you if he feels you two can't work together.  It's a two sided-relationship - just as you have the right to dump him.  Even so, I would write a complaint to the state board about his behavior - not following through with scheduling testing for several months and dumping you when you inquired.

On to the next one.  We all need a neuro who will LISTEN to us, LOOK at us carefully, THINK about the date and now I am going to add ACT on our behalf.  That is why we sometimes must Doctor-Shop.

I am currently with neuro #9.  

Quix

147426 tn?1317265632
by Quixotic1, Mar 23, 2010
Sheesh!  THINK about the data!

572651 tn?1530999357
by Lulu54, Mar 23, 2010
Unfortunately you operate a totally different way in the UK than we do here.  From what others have said, it sounds like the first hint of trouble from a patient, especially a complaint, will get you dumped in your system or at least ignored indefinitely.

I hope your GP will be kind and help open doors to another specialist/consultant who will treat you are you deserve.


I understand getting the copies of your own records can be next to impossible through the NHS, so please be sure to have your GP order copies.  You will want those for the next doctor.

Don't give up looking for the answers - you deserve to know what is wrong.

be well,
Lulu

1137779 tn?1281542505
by silkcut, Mar 23, 2010
Hi suzsibs - just caught your post on the side panel at limboland forum.

I'm really sorry that you've had this abysmal experience. I can feel the heckles on my neck rising in sympathy!

I'm in UK too. My experience with several neurologists is that their arrogance, rudeness and defensiveness is always just under the surface. I've had intimidation in person and in writing as well as unbelievable waits. For our American friends, it really is commonly this awful here, and we just cannot doctor-shop. If you go to a private neuro even once it's counted as you being a hypochondriac and also the private neuro is bound to be a pal of your NHS doctor so....basically we're stuffed. (Plus ofcourse, the NHS doctor can and usually does completely dismiss private opinion/results and insists on doing the tests all over again which involves another long wait.)

. Well done you for standing up and complaining. Sadly, I;ve found that the complaints process doesn't do anything but allow you to vent. Then they seem to put you to the back of the queue. But I do think far more of us should complain - many specialisms here, particularly neurology, are atrocious and it's about time we all voiced our dismay.

Of course, whatwe should do is get a group together for each one of us who has an appt andjust sit there in the background watching and taking notes! Maybe neuros wouldn't be so keen to treat us so badly if there were half a dozen of us sitting at the back!!

hugs
samx

572651 tn?1530999357
by Lulu54, Mar 23, 2010
Hi silkcut - I tried to leave you a note of thanks for joining in this conversation and validating the frustrations but your account is set up to not accept notes at this time.  Did you mean to do that?  If not, you need to change your personal settings.  - Lu

551343 tn?1506830518
by MrsAristotle, Mar 24, 2010
Hi lulu54, my thoughts are totally unprintable. You should read the post on our limbloland forum from Analabcess about our rubbish NHS it will make you feel better lol.

She has been messed about for 12 years.....

I hope you are going to complain about this neuro or did i read it right you already had, sorry i find it hard to read capitals so I might have misunderstood.

You go girl you need answers and now perhaps this idiot has done you a favour.xxxxx big and huge hugs. mariaxx

1168938 tn?1327154232
by suzsibs, Mar 24, 2010
Thanks all of you for your support, I feel better just for having a rant on here. Thanks for all your I advice hope you all get better service than I did and answers to your questions. Be well. All the best Suzanne x

Avatar universal
by dralj, Aug 27, 2014
did anyone find anything as all these posts are 2010.  and it is now 4 years later.  maybe maybe they have found something.

Avatar universal
by brainfried, Aug 27, 2014
I just came across this. I have had many neuros for my epilepsy. The trick was finding an epileptologist. Neuros see everything from migraines, alzhiemers, ms, etc....all in one day!
Find a neuro with a sub-specialty in your case, and find a lawyer. Under hippa rules, you have full disclosure to every second and every spike, wave, lp, and individual cell in your body. This jerk broke the law and doesn't need to be practicing. Don't just think about you, think about how the other patients are doing under his watch. A busy dr isn't a good dr. Good docs heal people and tend to have more time. If you see a packed waiting room, it's a red flag that somebody isn't doing their job.

Avatar universal
by brainfried, Aug 27, 2014
You should see the scars on my face from myoclonous! It's no joke, and it could get worse. It's one thing to have refractory status epilepticus, but having myoclonous now has made me even more diligent. Please get an EMG.


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