Jul 27, 2008
I just joined this community. I have always wanted to be in contact wtih others who understand the impact EBV has on life. Most people do not understand it. It is a lot better than 23 years ago when i was diagnosed after a TON of tests coming back negative. I am interested in any information on treatments or NYC physicans who believe in a holistic approach and who speciallize in treating EBV. Here is what I have been through:
I was diagnosed 23 years ago. I was put through cardio tests because of chest pains and papatations, barium enemas, GI series, , IVP for kidney problems, dentists for sores inside my mouth, neurologists for my headaches, orthopedists for my joint pains etc. My throat, neck, hips and groin area were constantly in pain. I was diagnosed with colitis even though my tests came back negative. (diagnosis based on symptoms) I ultimately suffered with panic attacks. This list goes on. I was tested for mono, AIDS, LUPUS, and host of other disorders. I was put on antibiotics many times. Everything was negative. FINALLY after I did some research, I found something about epstein barr and asked my doctor to run the test. He laughed at me and said "you don't have that." Well I did have it but he said it was not active. Many reports indicate that EBV does not cause symptoms if reactivated. I have had several activations and symptoms come right back full force. I have also had kidney stones and cysts on my kidneys and i swear its from EBV too. Fortunately the activations when caught early can be fairly well dealt with for me. I take mega doses of Vitamin C (chewable Super acerola plus) super lysine plus, a food based liquid blend of essential vitamins (Natural Vitality is my favorite, it really has an amazing mix in it), Garlique, Procosa II with tumeric by usana, Fish oils (Biomega has lemon oil and is easy on the stomach) and I take Aloe Vera with water twice a day. I elimate white flour, sugar, and processed foods as much as possible. I stay away from alchohol and products wtih yeast. I drink fresh veg juice as much as possible. (carrot, beet, kale, ginger, apple) I also do a cleanse for 30 days. I like cleanse smart, its easy and reasonably priced. I try to exercise every other day. When my ebv is active, I do light exercise because heavy excercise makes it worse for me. I try to get sunlight and stay positive and pray lots. Stress is certainly present when I become active. I surround myself with positive people stay thankful that I can be proactive and feel better with time and effort. I hope this wasn't too overwhelming. i wish you and everyone on this board the best.