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My Story Part 4 - July 2009

May 13, 2010 - 0 comments
Tags:

myoclonus

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apoointment

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Dr G

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Neurological Exam

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medication

,

physio

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lumbar puncture

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saline drip

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blood patch

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back spasms and pain

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post lumbar puncture headache

,

hospital stay

,

anaesthetist



8 July 2009
My dad wasn't happy that we were only treating the symptom of some unknown cause by drugging me up so he wanted to get a second opinion. He got Dr B to recommend someone, so she got us an appointment to see a senior neurologist and that is where Dr G came into the picture. I was very skeptical to go to the appointment with him because I have this think about hating to go to doctors in general and seeing a specialist just makes it even worse. Now I'd seen Dr B a number of times so I was just getting comfortable with her and now all of a sudden I had to go to Dr G, so I wan't happy at all about that.
The appointment with him was less intense than the first one that I had with Dr B. I found that a bit strange because Dr B had forgotten to give him a call in advance to tell him that she had sent me to him. He asked a few questions and then did a shortish neurological exam, it was alot shorter than what she had done. He also gave me a diagnosis of myoclonus and reminded us that myoclonus is usually a symptom, not a disease on it's own. He did mention however that sometimes there is no cause and after you take the medication for a few years it disappears on its own. He also showed my dad a textbook that showed that there is a small percentage of people that actually don't have a cause and that seemed to satisfy him. He mentioned that he was surprised Dr B didn't do a lumbar puncture and he said he would speak to her to get one scheduled and she would do it because I stayed alot closer to her.

24 July 2009
I was admitted into hospital for the second time in a year to get the lumbar puncture done. I hate how you always have to be there so early even though your procedure can sometimes only be in the afternoon. The lumbar puncture was done and like all the other tests everything came back normal. I'd just like to point out that movies and tv make it look excruciatingly painful but it's nothing like that. It seriously is just like a normal needle ***** except that it's in your back and I didn't even get any form of anaesthesia, the doctor that did it just numbed the area by applying pressure. The bad part is the lying flat on your back part afterwards for 5 hours you can't really do much except sleep and I don't like sleeping on my back, I prefer sleeping on my side so it was highly annoying for me. With my bad luck though I got really bad back spasms and pain plus a post lumbar puncture headache so Dr B said that I should spend the night.

25 July 2009
The back spasms and pain and headache had just gotten even worse So I was told by Dr B that I would be spending the night again firstly for observation and also because she thought it would be a good idea to get the physios to work on my back to relieve the pain

26 July 2009
The back spasms and pain was still there however they started getting alot better. On the other hand the headache started getting worse, especially when I was sitting or standing. I was so bad that I actually waited until it felt like my bladder was gonna burst before I got up to go to the toilet. I would also wolf down my food (usually I'm a very slow eater) so that I would spend as little time sitting as possible. I was put onto a drip for the first time in my life to see if the saline solution that was being pumped into my body would help with the headache.

27 July 2009
Throughout this whole thing I've had the worst of luck with anything that had to been and this was no exception, the neurologist even pointed out that everything that could go wrong always seemed to go wrong with me. The saline drip didn't help at all so we went onto what Dr B called drastic measures and she scheduled for me to get a blood patch. I was told that I would get the procedure sometime in the afternoon so I waited and waited and waited... Eventually at about 7 pm they came to take me to do the procedure. I found it kind of strange that I actually had to go into theatre to get the procedure done. For those who don't know, a blood patch is where they draw a syringe of blood from your arm and then puch it into your back. This is supposed to form blood clots and close up the little whole where the CSF is leaking out and that should relieve the headache (the headache is caused by the fact that your brain floats in the CSF and if that amount decreases your brain actually touches your skull and that causes the pain.) I thought it was really entertaining because it had turned out that the anaesthetist (Dr T) had actually forgotten about me and she went and took her son to a soccer match before she realised that she still had to do the blood patch for me so she rushed back. I didn't find it so funny though when she did the actual procedure. It was the worst pain that I have ever felt in my whole life, even breaking my arm when I was a kid didn't compare to that. I don't even know how to describe the pain, it was just horrible. The worst part was that afterwards I was in excrutiating pain and I was paralysed from the waist down, I couldn't move anything. I won't lie that was a bit scary but Dr T did warn me that it might happen so at least I knew it was normal if it did happen. The best thing though was that during the procedure I was sitting with the bad headache but as she injected the blood back into me, I could feel the heading going away. I found that absolutely mind blowing, it was amazing. After about an hour I started getting the feeling back in my legs, the headache was gone and I was a happy person once again.

28 July 2009
The physio came to work on my back again just to try get out the final kinks and then I was finally discharged with the "famous" "see you in six months" phrase. It was amazing how what should have been a one day procedure turned into a 4 day hospital stay for me. By that time it's safe to say that I never wanted to see the inside of a hospital ever again

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