May 20, 2016
That's how long it takes for my Plegridy side effects to kick in. I'm working on moving my injection day back by 24 hours, so am enduring taking this shot during the day today. I went into this one feeling pretty awful and knew I'd get to be awake for more of it than I would like, so my expectations were pretty low.
The constant for me is the incredible spine pain. It starts below my shoulder blades - pretty much mid-back and then slowly starts to scrape up my spine until it reaches the base of my head. I'm also noticing a lot of jaw pain and the headaches go along with it, too.
I have switched from Aleve (naproxyn) to Advil (ibuprofen) this time because I woke with the most massively painful headache this morning. Almost like the ice pick headaches that preceded my last round of Abducen's, except it didn't flash in and out - it just stayed. I couldn't see clearly out of my left eye. So, I had to make a choice - try to quiet the headache with Ibuprofen or pre-medicate with Aleve to help with my post-injection body aches & pains. I chose to address the headache & crossed my fingers it wouldn't mean a day of misery for me. It's too late to switch back over until tonight - because the Aleve is a 12-hour med, my next dose would mean setting an alarm clock in the middle of the night to ensure I'm able to sleep. So, I will switch over tonight and hope the headaches subside.
I have mentioned this before, but for anyone who is reading this thinking of starting Plegridy, I think it is worth mentioning again. Plegridy makes my MS ANGRY! My symptoms flare up royally and I experience more pain and heaviness on my right side where all of my spinal lesions reside than on my left. It is really weird. I asked the specialty pharmacist about it and my MS neuro. Neither had heard of this. So maybe it is just me!
I had a reasonably good experience 2 weeks ago with my injection. I stayed active & was able to really push through the side effects. I felt tired, run down, heavy; but I didn't experience the pain I'm having again now. My fingers are crossed that this injection joy is simply a combination of factors: run down, not enough water today, Advil instead of Aleve, and the AM injection instead of PM. This is my 7th full dose injection. I need to get through 6 more before I will get to see via MRI if this is doing anything at all for me. I hate to wish away time, but late August cannot come fast enough!!
Cheryl who is thinking this better be worth it!!!