Aug 27, 2010
I was asked to type some stuff...I'm sloppy, I'm messy and I'm bringing sexy out of the thyloset with some friends!
Random questions I answered for DearThyroid.org (beware this site is R rated just like me!)
What kind of thyroid cancer were you diagnosed with? How many years have you been a survivor?
I found my doctor August 2009, the one who finally listened to me. All my blood labs were “normal” except he noted my antibodies were odd, and a lump on my thyroid.
I was told I had a 25% chance of cancer, so I volunteered to have a total thyroidectomy in Nov. 2009. They called two weeks later to tell me I “had” Papillary Follicular thyroid cancer on the isthmus of my thyroid. They also confirmed I have lived most of my adult life undiagnosed with Hashimotos auto immune disorder. So much for 25% chance of cancer…
September is thyroid cancer awareness month. What does that mean to you? Why do you think awareness is important? How do you spread awareness?
This is my first year in the THYCA clan. Awareness can save lives. Too many young men and women think that cancer is an old person’s disease. Sadly it’s far from the truth. I have been preaching to all the ladies, once a month when you check your TA-Ta’s to please include checking your neck! I kept a blog log of my diagnosis, my thyroidectomy, my days during the hypo preparation phase, my adventure in RAI and more on MedHelp.com open to the public to try to let others be informed and connected,
Many thyroid cancer patients have been told, “If you have to get cancer, thyroid cancer is the one to get.” What do you think of that statement? When you’re told this, how do you respond?
My husband and I both got “golden ticket” cancers. My husband was told he has the cancer people line up for, a “golden ticket” cancer. What a prize to win on a 60/40 medical plan.
My non-smoking husband was diagnosed with Hodgkin’s Lymphoma at the age of 24. He had to have gallium scans, two bone marrow extractions (he felt every agonizing jab into his marrow, while I helplessly watched), surgical removal of a rib bone to gain access to his tumor in his chest, a separate surgery to insert the chemo port under his skin, near his heart… too many blood tests, MRI’s and many CAT Scans, then radiation five days a week for months (or the daily shake, and bake is what I called it)…then came the chemo cocktail once a week for months. He finished all his treatments just as he started developing tiny blisters all over his hands. His oncologist said it was blistering from the inside out, due to the chemo cocktail he was served weekly.
I have to say I am lucky, and unlucky. I got the total thyroid removal, the RAI 131 100 Mci treatment, the torturous low iodine diet, and the old school no medication for almost 3 weeks of hypo hell that almost destroyed me. My doctor said, “Wow, you are lucky to get this cancer.”
Hooray, I am another “golden ticket” winner, this time with a slightly better medical plan. Somehow I can look at both sides, where I am lucky, and I am unlucky.
My husband and I baffle our doctors with both of us getting a supposed “rare” cancer that plagues “healthy” people. I still contend, after all of this…we should have developed super powers, and I should have a cool cape with a super body!
Dear Thyroid is constantly working to dispel the myth that thyroid cancer is the good cancer or the easy cancer. What other myth would you like to dispel regarding thyroid cancer?
That it’s a middle aged woman’s disease. Young, old, male or female…thyroid cancer is happening more, and more to both genders at an alarming young age!
What one thing would you tell the world about thyroid cancer?
It’s one of the “healthy” people cancers. This cancer does not care if you eat well, if you are a smoker, if you are young, or if you jog…this cancer does not discriminate. Check YOUR THYROID each month!
What advice would you give to a newly diagnosed thyroid cancer patient?
Educate yourself! Do NOT rely on doctors for your answers. Join support groups, go to the library, befriend doctors, read! Be vigilant in your research of not just your disease, but the doctors you choose to help you on your path of better health. Do not let this disease define you, rather help be someone who helps change the very definition of this disease!
Do you have a funny thyroid cancer-related story you are willing to share?
When I was preparing for my RAI 131 treatment, doing the low iodine diet, and hypo hell I had to eat lots of veggies. It was terrible dealing with diarrhea one day and constipation the next.
I also found that the new low iodine diet made me fart like a gorilla in the mist! Sweet Lord!! My children kept checking to see if it's "clear" before approaching me. One morning I let a fart fly that was over 5 seconds LONG! No hiding that one! Even with the bathroom door closed! I remember my kind hearted husband yelled from outside the bathroom door, "Heyyyyy, that's not just sexy, that's classy annnnnd sexy!" LOL!
Information about Dear Thyroid to include in your post: Dear Thyroid is a thyroid support community and literary brand. Our goal is to connect patients with each other, to create awareness for thyroid diseases and cancers, and to give all thyroid patients a voice. We come together as a united front to invoke change on behalf of thyroid patients worldwide. Thyroid patients are invited to submit letters to their thyroids, thyroid rants and raves, and other literary creations. Help us to create awareness for thyroid diseases and cancers by wearing your disease on your sleeve and by requesting one of our free awareness bands. Visit DearThyroid.org to learn more!