May 31, 2019
54 years old, female.
I was quickly diagnosed by a Dermatologist that rushed me through appointment. After three appointments being rushed said; you have some sort Occipital Neuralgia. Did not really listen to me only looked at me strangely and dismissed my symptoms. I went on a year search for Doctors to treat Occipital Neuralgia and Doctors to treat me. All the while scalp got worse and my hair texture has changed horrifically.
I received steriod injection every two weeks for 2 months and that stopped dagger like pains coming from the top and back of my head. Month 2 no dagger pain.
Botox helped a little but was disappointed it didn't do more. This is why I am question...do I also have a bacterial or fungal infection on my scalp???
My hair texture has changed to wire like, extreme broomstraw dry, and in a very short time frame (not the age factor gray hairs). My tyroid is 100% fine too! These other symptoms are bizarre and when outside in sun they get a very odd feeling to touch hair (plastic thick feeling to the touch...it's not pleasant at all). My scalp is now completely covered and hurts constantly... And feeling is like my hair hurts! Those bizarre new hairs tangle with the normal hair and it hurts to comb it out.
I have no sores,just a little swollen scalp and you can visually see where hair has tangled it can make my hair stand straight up from the tangles.
I am a very clean person and took care of my hair and body.
Could this be bacterial fungus? Can a bacterial fungus untreated for over a year change hair growth and texture? I had long hair past my shoulders. I cut it off and even shaved my head trying to get relief from this and hair grew back the same but drier! It mats to my scalp now! There is no denying this fact it's visual!
All of this started when clearing out areas around my arceage surrounding my house. Live in the South where Saw Palmetto leaves needed cutting back from 16 years of growth about 20' feet into the woods. They were full of some pretty nasty stinking mold and some sort of bug waste. Really gross! Of course I showered but was exposed all day in the hot sun until I came inside to shower. Worked on this for several months being exposed.
This is why I am asking is this more than Occipital! Neurologist said Occipital would not cause hair to hurt...
Who only looks at me as if I am Delusional!!!
Why do Doctors do this? I am honest about symptoms and just disregarded... I am certainly not a Delusional person nor do I suffer from mental Illness of any kind.
What do I do now? What kind of Doctor should I go to in order to be taken serious and not disregarded. This is awful and I watched it progress to point it's covered my scalp.