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a rare syndrome

Nov 24, 2010 - 2 comments

if i put goldberg blah blah no one knows,its been with me for such a long time and ye know wat?not me,my daughter,an she is an angel,she has goldberg and shprintzen syndrome what my eldest daughter had,but my eldest daughter would of been18 yrs old today.still no answers... guess im just really thinking about charley ann tonight.happy birthday babe,love you all the stars.you will never leave my heart mum xxxxxxxxxxx

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by margypops, Nov 25, 2010
Hi marylou we communicated a while back and I see you are still searching for answers, I would also be doing that keep searching there must be someone else out there, Happy Thanks giving to you and your family  hugs Marg

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by JON1953, Sep 17, 2013
My daughter has this syndrome!!! Please contact me. She was just recently diagnosed. I, too, am searching for people who have a child with this syndrome. Her actual syndrome is Goldberg Shprintzen Megacolon Syndrome. She has a variation of this. I am sure many m ore out there also have variations of he syndrome.

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