Jan 22, 2011
Well I am happy to say I am starting to feel a bit of Normal in my life these days. The Insurance Company still won't pay but Medicare Will do there 80% and I will take that. I will be checking into some things that I can get help on and I really need to try and make myself go to a Support Group but being that I have Anxieties it is so hard to push your self out the door but to be honest telling myself that I don't know how long I have seems to help.
I have found that my OCD is really kicking into high gear and that I have a need to get things in order and I know part of that is because I can't keep a hold of my health so I will do what I can ...And you all know that I moved in here on my last go around with Chemo and had only been off it for 8 months before I got Cancer again and so now to be honest it is so much better and I can have some one up here and be happy. And my Girl Room is Totally A Girl Room...and my husband and I are going to get the Spare Room into a Spare Room that Still holds my husband's and Mine and My Son's stuff. It is odd's and ends...Bunch of odds of my art stuff. Most of the stuff I use daily is in my Room with me.
Anyway I started the study on the 19th of this Month so just a Couple of day's ago and Pretty good so far. A bit tired and not too hungry and up set tummy ....
But the Tummy thing goes away
the not too hungry Well I am a Women what can I say...
the tired thing I am hoping that will go away.
Oh and the hair loss well that one does not make me happy but I'm hoping again that will stop.
As for what do they say about the Study..It is Called E7080 and it is for Stage 4 Melanoma With Such and Such Type of Cancer and all that Crap and like Many have said to me .. The reason this time is so different then the others is because they for one Can't remove the Cancer. 2 More has already shown up
And there is over 250 Different types of Cancer and I am by No means mad I'm trying to help people understand what helped So and So does not always help the Next person.
So with a Trial that is what it is..a Trial..I'm in Stage 2 of this Trial and I hope that is a Great learning experience for me and the team and that it stops' my Cancer or give's me way more time then what I'm Looking at with the other Option's left open to me. Which is 4 years Maybe 5 if I was Super Lucky.
Yes it is a Super Big Trip to have that sort of thing said to you and to think that if this does not work does this take how much time off my life? How long do I give it? Oh yes all good things to remember to ask Next time I am in.
For Crying out loud I swear I have talked Cancer and done blood draws More CAT Scans and X Rays then I want to in I don't know how long..But I have more to go and I try and tell myself that it is my life now. It is not a bad thing it means I am alive..
Oh I am trying Hard to stop the Negative thinking and I am trying to Live each day..Funny how I was on the Computer All the time and Now I am not on it much at all. But I have Loved Reading and I have Loved Watching Stuff like the History Channel and Documentary's on Buddha to Ghost to you name it...and then I love to Paint and oh I am getting out of the house more and I am Cleaning the house all the time..or as Much as I can.....I am learning that I can't do as Much as I did do not so long ago...But again I can learn how to get along and I will be looking into help.
Well I wanted to let everyone know how I'm doing..
Love You all
and God Bless