Feb 04, 2011
I guess it's time for me to leave this forum. I don't belong here anymore as I am now totally classified as a permanent limbo lander. There is no forum for that and there is no advice I can give anyone anymore as I have myself have nowhere left to go. Even for limbo landers looking, I have nothing left to offer.
The following is what has recently happened that has led me to this decision.
I got a call finally a month later (after my last voice issue) from my family doc's office and the nurse told me that no new neuro will take me on. They say that there is nothing more they can do for me or test me for and for me to go back to the other neuro who sent me to the MS clinic. She told me unless I become paralyzed or something similar in severity, that would be the only way they would take me on.
The problem with going back to the neuro I had is that he no longer wants to see me either as he was sure I had MS and after the MS clinic said no, he basically told me that I'm not that bad off as I'm still walking so not to worry about things. He's also the one that told my family doc after a bad flare that I needed a psyche eval and not treatment.
I did go for the eval just to get that off the table and guess what? There is nothing psychologically wrong with me and nothing that would be causing these symptoms. Go figure.
Anyways, my family doc has gone from telling me when I first saw him a little over a year ago that he would do anything and everything to help me, has basically written me off as well and says there is nothing more he can do. I was the one who lately had to push for him to see if he could find someone to see me and when asking him about seeing an ENT for my recent voice issues said it wasn't worth it as they wouldn't find anything anyways. So I am now left in the dark and nowhere left to go as here in Canada, to see anyone, you need your family doc to refer you.
I can't thank everyone enough for these last few years supporting me and helping me through some scary days. This is an incredible place and I will always think of you as my second family but it's time for me to say goodbye. I wish you all well and pray that cure for MS is just around the corner. Through you all, I have learned so much about this disease and have learned how silent symptoms can be just as debilitating as the visual ones.
I send you all my love and only wish happiness and good health for you.