Mar 04, 2011
Well, we are starting the second week of the Migranal(DHE). Not so much help. He has not been able to have the teacher come all week, sick in bed. He is also just flat out exhausted! Plus, as I feared, the insomnia has returned. When I left for work this morning, he was wide awake and had not slept a wink all night. Which means, he will fall asleep some time today, then not be able to sleep tonight.
The new gastro called me back on Monday. He is not sure what to do. He does not see these issues in children, so he is going to consult with an adult GI motility specialist. This was one of the reasons I didn't want to leave our Cleveland doctors, since we had the GI autonomic specialist. He said usually when you have delayed gastric emptying, the duodenal test is also postive for nerve damage, while Cody's duodenal(sp?) was fine. I wish he would just refer us to the motility specialist and she would accept him as a patient even though he is not an adult.
I'm also guessing the weather change is playing a role in this. It has been very warm.
How is everyone else doing? Nick, Casey, Whitney?