Jan 16, 2008
I have not left the house except to go to a doctor or test in 6 weeks, and my husband has driven me as I feel too weak. I have chronic diarrhea with severe gas after eating. I and am afraid to eat anything that will cause distress and have lost 40 pounds in 4 months (20% of body weight). Constant nagging abdominal pain ULQ whether I eat or don't, I also have anxiety, sweats (no fever), tremors, and lower back pain. Symptoms were occasional at first but are now almost daily. I wake up in a sweat (which seems different from a hot flash) and fell sick until I have a stool. First stool may be semi-solid, about an hour after eating throughout the day, stools are watery and yellow.
I force myself to eat as I have NO appetite. I feel only weak, faint, pain (and anxiety), not hunger if I don't eat something every 2-3 hours. An I feel full right away when I do eat. Daytime seems to be worse, Evenings are better (or I'm just starving), I can usually eat a small meal. I have avoided most dairy (have eaten yogurt and cheese), alcohol (I was a heavy drinker), all caffeine. I have also eaten bland, cooked, low-fat, soft or liquid foods, avoiding raw veggies/fruits, or fatty/greasy foods. I added Boost High Protein for nutrition. Many foods I can eat one day I find unpalatable the next. Sometimes water upsets my system.
Tests done December and January include abdominal CT, chest x-ray, barium swallow upper x-ray, barium swallow intestinal x-ray, gastroscopy, colonoscopy, pill-cam intestinal, and various stool samples. All appeared normal or were negative. Liver, AC1 and thyroid blood tests done at my family practitioner in November were normal.
I have had previous DVT episodes (unexplained cause) so am taking Coumadin for life. Complete hysterectomy in 2005 put me into menopause but I cant take most supplements because of the DVT. Had a Nissen fundolication to repair a para-esophaghal hernia in March 2006. I also take Prilosec (20mg/day), Lexapro (5mg/day down from 20), Singulair (10mg/day), and Ambien CR (12.5 mg/day or I can't sleep AT ALL). I'm wondering if one of my meds is causing some of these symptoms since I quit drinking. I also wonder if I may be having vision problems and seem to be light and color sensitive. I wear new prescription glasses (I got about the time this started) and have some blurred vision.
I have suggested Habba and Dumping syndromes to my GI but have not been tested yet. He's ready to send me to Mayo or Iowa City.
I am desperate. I have been away from my job on unpaid leave for over 4 weeks now. I am afraid to drive or leave the house for fear that I may soil myself in public. Anxiety and depression are worse. My friends and family offer to stop and visit but I don't want to see them like this.