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Worry For My Children

Mar 11, 2011 - 2 comments

Recently, I took my 14 yr. old daughter in to her pediatrician because she had a sore throat. It was discovered on this visit that her thyroid was enlarged. The doctor ran some blood panels (TSH, T4) and days later I was getting a call back saying that her thyroid hormones were elevated.

Being a limbolander, and being tested out the wazoo..I knew what this meant for her. We were referred out to a pediatric endocrinologist at Children's Hospital.

The endocrinologist was very nice. We went over our vast family history of autoimmune diseases in the family. He confirmed that my daughter had Hashimoto's and was now going into hypothyroidism. He repeated the blood panels, adding on several others to see how bad the antibodies were at work. He said he would go by these results as to treat her with meds.

He tested her reflexes and they were good. He was teaching a student at the time and asked if it was alright if she observed. He had my daughter get in a chair on her knees and he tested her reflexes in her ankles by tapping on her achilles. He described to the student how if damage was present, the foot would rise but slowly drop down, instead of what my daughter's feet did ( they rose and dropped down immediately). He believed from this reaction that she hadn't had hypothyroidism that long and no damage was done as of yet.

Her blood panels came back showing more elevation of TSH and elevated antibodies so the doctor decided to treat before any damage was done. She was placed on Levothyroxine. He also took a look at all of us that came in to see if our thyroid was enlarged. He said everybody that came looked good but he did advise me that since I'm unDX, that my doctors need to look further into the autoimmune disease department. He said that although I might not have the same one..it was likely that I was suffering from one, since my daughter now has one and my mother has one too.

When we got back home, I took a look at the only family member that didn't go, my eldest son. He's 18. I had him do exactly what the endocrinologist had us do..look up and swallow..and OMG.. his thyroid looks enlarged too. My mother came by a few days later (she's an RN) and she confirmed what I'm seeing.

In the meantime, I'm trying to get him in to a doctor. Since he's 18, the pediatrician won't take him (I tried), so I'm trying to get him in with my GP...which could take a month..so I'm pretty frustrated right now.

I guess this was the first time I was thankful that my kids got strep throat. If it wasn't for the strep throat, my daughter could have suffered damage from this disease.

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1396846 tn?1332459510
by figuerpa, Mar 11, 2011
Wow I am so sorry for what you are going through. My thoughts and prayers are with you and your kids. I truely hope it all turns out well and you get a hold on this and find out what is going on.


With everything you are going through and now this your stress load has to be off the charts. I wish you the best. Get him into Childrens Hospital. They take children up to 21 so you should be able to have him seen there.

Good Luck dear and you know we are here for you,
Paula

279234 tn?1363105249
by slightlybroken, Mar 11, 2011
Thanks Paula. I just wish his pediatrician would have just seen him one last time. I explained the situation, but I'm not sure if the nurse relaid the message to the doctor on what exactly I was seeing in my eldest son.

The bad part about it..he does have symptoms of something going on, unlike my daughter, so I'm pretty desperate to get him in, but every place says there's a waiting period for a new patient.

BTW.. the stress levels are off the charts!! It's one thing when it's happening to you, but a totally different situation when it's your children.

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