Sep 18, 2008
Okay rather than type it all out again - I am posting my journal entries for the last two days- that are about Dave:
Entry for 16 September 2008
Didn't sleep to bad considering the worry. Woke up early and finished getting ready, I left home at 7am.
Met David at the hospital at 8am, he was really well behaved and quite excited. We had to share a room with another man which wasn't ideal but David handled it really well. We were shown the room but given no direction, no introduction and left alone (me, Dave and 2 Aalps staff) for 1 hour and 15 minutes before a nurse came in with surgical stockings and a gown for David - he was not too impressed and said he looked like a girlie.
The anaesthetist came in to see us and he was an arrogant pig - he said they saw no reason to do the 24 hour tape after all and that after surgery Dave could go back to Aalps – I was not impressed - he said if we were worried about his heart we should just bring him back through A&E! What an idiot – without the blood pressure, heart trace and oxygen sats being measured we wouldn't know anything was wrong till it was too late - We over heard 2 nurses talking saying that they didn't know how they would cope if Dave kicked off so it was best if he went home as soon as possible! I was lived!!! This anaesthetist dismissed everything I said but did agree I could go to the Pre Op room with him till he was under.
Dave went down at 12 noon - we had a lovely lovely scrub nurse that took us down , she was really nice and attentive to Dave and put him at ease. We got in the Pre Op and the surgeon looked at Dave and said “ He isn't marked - why isn't this patient marked?” so they put an arrow on his LEFT side!!! I said “ but the hernia is on the right side” to which they looked at the paperwork and found some said left some said right and the consent for was for the left... remember I want' allowed to sign the consent for because of the stupid incapacity act, the registrar had signed it. So they had to go find the registrar who was the on call man for the day... get the form changed and then start the anaesthesia, so Dave had 30 minutes lying on the trolley in the Pre Op room with 7 gowned and masked people faffing around him - totally inappropriate for someone with autism.
They started the anedthetic and just as he was going under the machines all started beeping and I was pushed out of the room - I now know his blood pressure dropped to 50/30 and they nearly lost him but with medication they bought him back up to acceptable bp.
I was told he would be 50 minutes and I would be called as requested straight into the recovery room before he was bought round. He was in 1 hour and 45 minutes and when they called me in they were struggling to wake him. Every other surgery he has had within 10 mins of the surgery he is up and awake and ripping open his stitches, which is what we prepared them for. I personally think the arrogant anethetist gave him a sedative of some sort which is risky cause of his heart. The theatre staff in recovery were lovely. It took 5 hours to wake him up and we couldn't get his oxygen sats up so they said he had to stay in over night on 2litres of oxygen.
The nurses on the ward were pleasant but we witnessed no towels, no bedding, no bed pans, no water jugs, and patients buzzing being totally ignored and nurses chatting at the desk about last night rather than answering phones and buzzers... When Dave's sats dropped to 87% on 2 litres I asked to see a doctor – he came and moved it to 3litres but was again rude and allowed nothing for Dave's autism. I told one of Dave's carers that I was going to be putting in a complaint - I said it loud enough for the ward manager to hear and wow in 10 minutes I had the anaesthetist back in the room – he was lovely, polite, attentive, informative etc--- this made me so angry - hypocrite!
Entry for 17 September 2008
Dave had no behaviours through the night but he didn't sleep more than 90 mins and that was in sessions - he did however masturbate for almost 9 hours! (so much for no sexual activity for 48 hours). Thankfully the old man in the next bed was deaf! The night staff were amazed... Aalps staff were amazed.. I was amazed but Dave was quiet and in his bed...
The Aalps staff that stayed through the night was really good with Dave and totally disgusted with the staff and the things we heard, obviously they had forgotten we were there and awake! Dave was back to his normal self, eating like a starved crazy man, flirting with the nurses and giggling away.
The shocking thing is he was released without a doctor seeing him, and we have no follow up appointment, apparently they dont do surgical follow ups now if the op went well!
Settled Dave back into Aalps and now they have the tough job of stopping him doing lifting or moving for 2 weeks and then restricting it for 4 more. David moves furniture which is autistic specific and takes 2 grown 'normal' adults to move, he just moves it himself. I was exhausted 38 hours awake and crappy food- so I had Fish and chips, fetched Elizabeth back from my sister in laws - she cried and wanted to stay there – (made me feel great) but once in the car she was fine. I let her go to bed at 7pm with the TV on and I just fell asleep.