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Sleep is not as refreshing as it was before the Diflucan

May 14, 2011 - 6 comments
Tags:

sleep

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Pain

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fatigue

,

Diflucan



I'm sleeping, however I'm finding the interuptions happening as they did before and now when I awake I don't feel as refreshed as i was getting before the die off stage started.  I'm feeling a lot more pain and fatigue during the day and feel like we've got to hit this thing hard now.  Still require pain medication in order to manage days and even nights as well.  There was some improvement and now I feel I'm right back where I started from.  The hands and feet mostly feet pain is very disturbing and the buzzing.  

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1353650 tn?1429463374
by donjoe341, Jun 20, 2011
I recently read this journal page and wanted to make a comment. The buzzing and the hand and feet pain, especially the feet are classic symptoms of bartonella (a co-infection of lyme). This is what my husband, son and myself are currently taking antibiotics for before we treat lyme. I hope and pray you get help with this soon. The correct combination of antibiotics is the only thing that will stop your pain as it has mine. Take care, Donna

1376367 tn?1319226427
by bridgeovertroubledwater, Jun 20, 2011
Thanks, Donna,  I had forgotten about this journal, but that's the reason I write it so that I have it documented and can reflect back to.  As you know full well when dealing with something as large as this symptoms come and go and get forgotten and we move on.  I find this medhelp great for documenting my feelings and I keep track of my exercise, sleep, pain, fatigue levels and migraines, which have stopped.  This is learning how to deal with with illness and I don't know what the next step is going to be for me.  Dr. V has said that it's too early to test for lyme and since the urine toxicity test was done and sent on it's way to them, Dr. V will evaluate the lab results and my appointment has been moved to June 30th cause of the screw up with getting the proper paper work and having the sample shipped out.  I still have to take pain medication in order to manage, so I look at the small battles that are being won first.  I just came back from walking my dogs and again this is now much more pleasureable than it used to be.  All the symptoms I had became so intrusive on my simple lifestyle that I didn't even enjoy taking the dogs out for a walk, well now I'm happy about this.  You know even though I wrote I thnk we need to hit this thing hard now, I don't know what Dr. V's plan of attack is.  Donna, maybe you can shed some light on this for me and let me know what you think I should be telling Dr. V.  I know that if I have metal toxicity this will be dealt with next with the same chelation pills that I took for the testing, I think.  Other than that, I am to continue with all my supplements and vitamins and the energy injections as they do help.  It's definitely the pain that is the culprit for me.  My tailbone is still the source of the majority of it, low back and neck pain.
Glen gave me a massage yesterday and this helped with the upper shoulder area.  I still use my Ceragem bed cause it definitely relaxes me and I can go into a nice little la la land.  Remember the naturopath I saw here in Victoria, well she has a Chinese woman that works for her and her specialty is lyme and Natasha mentioned that they use IGENEX for lyme testing.  So I am going to mention this to Dr. V when we talk on June 30th.  The cost is around $700.00 and I can get a copy sent over to him.  This will save me from having to travel.  This is one thing that has been a great positive for me that I don't need to keep going over to Seattle back and forth.  Can you imagine the cost factor for me with ferry and hotels continuously.  I'm thinking that I should get my hormone levels checked before I speak to him as well, cause this has not been tested yet either.  Talk with you later, and thanks, I greatly appreciate your input cause this helps to guide me as to know what I should be looking at and asking for next and not leaving it all up to this doctor.  Lots of love Halina

1353650 tn?1429463374
by donjoe341, Jun 21, 2011
I have been thinking more about what your doctor is doing. You know if your immune system is very run down it will be difficult to get a positive test even through igenex. I believe your doctor is trying to strengthen your immune system and it makes a little sense but if you continue to have to fight these infections with out treatment you will continue to be in pain. One thing you can mention to your Dr. V is that your friend has lyme along with Bartonella and Babesia. Tell him my lyme doctor says that the fibromyalgia, overall nerve type pain, racing brain at night when your trying to sleep, tight leg muscles causing restless leg syndrome, swollen glands, sore bottoms of feet are caused by the Bartonella and it should be treated first before the lyme borrellia or any other co-infection. If he doesn't do it this way or he goes strictly by test results run as fast as you can to a different doctor. I can also tell you what antibiotics you should take for Bartonella and how much. My igenex testing only cost 250$. You do not need to spend 700$. You can contact igenex and find out what the basic test costs. This is what we had done and that is all you need. I can talk to my doc tomorrow at our appt. and find out the code for the test and I 'll get back to you later. In some ways my son needs the treatment your in. He is so run down and he is getting worse by the day while he is on the antibiotics. He has a very week immune system and the antibiotics are helping it to rest and recover because they are doing the immune systems job. The problem is we need to help rebuild his immune system or he will never be able to battle this awful disease. I am going to talk to our doc about this tomorrow. I understand where your doctor is coming from but I think your pain needs to be addressed very soon. I read that you got a migraine when you had something sweet. Well I am going to ask the doctor about migraines tomorrow because I just got one yesterday. I haven't had one since being on the I.V. I told my husband that our old symptoms are creeping back. His IBS has come back along with his hypoglycemia. It has taken 4 months and our lyme symptoms are all back. This is because we never got rid of the co-infections first. I will let you know what my doc has to say tomorrow. Take care of yourself. Love, Donna

1376367 tn?1319226427
by bridgeovertroubledwater, Jun 21, 2011
Thanks, I appreciate you input and have full intentions of talking about this with Dr. V on June 30th.  Yes, that's true, he did say in the beginning that my immune system was so far gone and depleted that this was his first concern with me, to build it back up.  The fact that i had such amazing results from the very start surprised Dr, V., but not me cause I always respond quickly to treatments, meds, whatever.  The only thing that stumped him was I reverted back and then he started to treat the Candida and more sypmtoms re-appeared along with new ones.  So, from this point the twitching and shakes, that go along with my crying spells and the buzzing I reported to him made him think that I have toxicity of heavy metals.  I'm really interested in knowing what the results are from this test and so is Gerry Poon, my pharmacist here in Victoria.  Gerry has taken quite an interest  and concern in my health issues as he too realizes that this is something that will take a long time.  Gerry's not that familiar with Lyme disease though, I did mention to him that this is what will be tested for in the upcoming future.  I had another spell this morning with the pain and then it turned into me getting upset and crying and then just laying in my lawn chair outside on the back deck and waiting for it to pass.  I had this alot when I was on the diflucan.  I thought it was over when I finished the 6 weeks of it, but one week later, I had an episode and again today.  So, if this is truly metal toxicity, the next step is chelation, only on what level.  Dr. V ordered me the DMSA pills, but since this was done, I've had more time to investigate what kinds of chelation there are and also I emailed my Mother-in-law cause she actually had many treatments of chelation years ago.  What my mother -in-law did was have I.V,. therapy, where the blood is cleansed with and I.V. drip.  I've also read that you can get ozone put into the bloodstream with chelation.  Remember that naturopath I went to, well I went onto her website and they do this stuff and exactly what I'm being treated for with glutathione for fibromyalgia.  I couldn't get her to think past depression and this is why she had me labeld just as the doctor's files that i gave her, so that's why I go nowhere with her.  Her clinic is where I got the price for IGENEX lab testing that would cost $700.00.  Boy who's making money on patients for testing.  Thanks about taking time to ask about the codes for the testing, which will help me for future costs and treatment. As you know living with this is certainly not easy and each day posesses it's challenges.  I'm always hopeful that it will turn around in time cause this is not an easy illness to deal with, however, I'm a little concerned as to how I'm going to fend when the seasons change and the darker and gloomy days come back.  Again, I thank god that I have a musical interest
and Ben the band director has just given me a new challenge to write words onto his charts, which by the way is not an easy task.  This is where my mind is at work with listening and trying to place the words on the chart where they go and break them up as the notes change.  When Ben writes a chart his music includes where the trumpets and other intsruments come in so I listen to hear where the other players come and put the words in accordingly.  Great challenge.
In July Ben will be doing classes about rythm, writing songs and charting.  I plan on taking these and hope I can gain some knowledge from him.  He has an awful lot to offer, if the student is willing to learn.  Anyway, talk with you later and hope all goes well with you doctor appointment tomorrow.  Let me know.  Take care Donna, say Hi to Joe and Logan, and love you and appreciate your help.  Halina

1376367 tn?1319226427
by bridgeovertroubledwater, Jun 25, 2011
Hey Donna,  I haven't heard from you and concerned about what happened with your doctor appointment.  You said you'd get back to me and tell me what he had to say.  I'm really interested in knowing too.  I'm coping and still having my episodes as I call them and not sure if it's the metal toxicity as i still haven't spoken to my doctor, June 30th I'll get the results of this test.  I went to the drugstore to get my prescriptions from Gerry's pharmacy and also picked up a bottle of B-12 as a back-up cause I always seem to run short.  I gave them the prescription from my doctor and the girl proceeded to put in into the computer and then when I got home I see what she did.  She charged me a dispensing fee on the B-12 when it can be bought right off the shelf and get this when I took it back and complained they charged me a total of $8.39 for this same bottle when given by presciption the charge was $9.69 then add their $11.99 dispensing fee which made it $21.68 for the same bottle.  This was my first time getting all the compound prescription medicine from them and the price is comparable to the ITC Pharmacy in the States, actually a little cheaper.  Better for me cause I don't have to pay customs and taxes on this.  Hope you're all doing well.  We're having the whole family over for a large dinner that Glen has been working on all week. My mother had this turkey she didn't want to make and therefore this gathering.  This should be interesting as we have never had the whole clan over in our little home.  It's the little ones that I'm concerned about and whether or not my nerves are going to be able to manage this.  I'm going on my Ceragem bed and hopefully this will give me a good foundation.  I just saw my grandchildren yesterday and now again today is a bit much for me, cause they're not well behaved.  My daughter keeps telling me that she is too tired to discipline cause she works, what a cop out.  I just like to limit my time around noise and uncontrollable situations because it definitely takes it's toll on my illness.  Talk with you later and hope all is well with you, Joe and Logan.   Love to you all,  Halina

1376367 tn?1319226427
by bridgeovertroubledwater, Jun 27, 2011
HI there Donna,  I'm sitting on pins and needles waiting to hear from you.  I've been having these awful episodes which I think are from the metal toxicity and having a tough time battling them.  They almost feel like siezures but they last too long to be one apparently.  It's bloody awful and they happen every day now and sometimes even 2 or 3 times a day.  They last up to 45 mins long and they totally take over my whole body.  I;ve alerted them over in Seattle and Walter says he will pass this on to the doctor.  This is freakin me out and Glen just watches or holds my hand or holds me sometimes.  Along with these sypmtoms of course I cry a bit on and off and then it just all of sudden seems to shut off. I really need some help with this, if you can shed some light on it, I would greatly appreciate it.  I sent off an email about needing another energy kit from them and Walter asks me if Gerry can get this for me as it would make the process smoother, since I got my prescriptions.  I wrote him back and said I thought they were supposed to provide this for me as part of the treatment plan that I paid thousands of dollars already and I already discussed this with Peggy as she already said if I was to get them from Gerry I would be paying for it myself.  Why on earth would I pay for this a second time when I've paid them the thousands.  I really feel that I'm not making them any money in this treatment plan and because of all the shipments that have been sent to me this is costing them, well tough ****, cause I paid to be treated not mistreated.  I hope to hear from you soon and that you're all well,  Talk with you soon, love to you all from Halina

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