May 26, 2011
I can't remember to wear purple everyday to recognize every person who undergoes decompression surgery. But, I wanted to do something to symbolize this disorder that has had such a huge impact in my life. So, until my own surgery on June 27 (if they make me take it out), I have put in a purple hair extension in my hair to symbolize Chiari Malformation. For all of my Chiari sisters & brothers, both pre-op & post-op & even those stuck in limbo...I recognize and support your struggles every day! You are all in my prayers to have "good" Chiari days!