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Wearing Purple

May 26, 2011 - 5 comments

I can't remember to wear purple everyday to recognize every person who undergoes decompression surgery. But, I wanted to do something to symbolize this disorder that has had such a huge impact in my life. So, until my own surgery on June 27 (if they make me take it out), I have put in a purple hair extension in my hair to symbolize Chiari Malformation. For all of my Chiari sisters & brothers, both pre-op & post-op & even those stuck in limbo...I recognize and support your struggles every day! You are all in my prayers to have "good" Chiari days!

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1372734 tn?1309950237
by niki3350, May 26, 2011
Thats amazing Honey and such a lovely gesture, I would love a tattoo but Im a bit scared of having it done, I would have the purple ribbon, like Molly, hers is amazing.

Not long now until the 27th, hope you are calm and relaxed and not worrying to much, hey whats the point it will only fetch on your symptoms with a vengence.

Hugs to you
Niki x  x

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by Stephiec79, May 26, 2011
Thank you Niki! After the surgery I want to have a tattoo of some sort with the purple ribbon! But, I have a few other tattoos. Getting them done aren't that bad....but maybe that's because of the decreased in feeling?? LOL!

I think I'm more concerned about the things I need to get done before surgery. I want my house power cleaned! That's hard to do with three busy kids and 4 dogs! I will, of course, keep everyone updated though!!!

Hope all is well with you?
Steph

620923 tn?1452915648
by selmaS, May 26, 2011
Stephie Love that Idea as well...I am not a tattoo person myself and think I may venture or lean toward this idea a bit more...will have to see if I can pull the look off .....I got myself a purple hoodie and am working on a few ideas for myself  that may help for everyday wear too....

1451338 tn?1413475023
by Stephiec79, May 26, 2011
Selma- it is such a subtle piece of hair! My 14yr old son even got one and his hair is short! Purple is his school color! I'm also working on having a friend make a purple bracelet for me. I could just buy one from the Internet but this makes it more meaningful :)

1372734 tn?1309950237
by niki3350, May 26, 2011
Hey Steph I never thought of that, the lack of feeling on my right side may come in handy if I do get a tattoo, wow we could add this to the 10 things I love about chiari list that has just been started.

Steph your house will be here in many many years to come, my mum goes mad at me for cleaning all the time and her motto on life is hey girl your house and dirt will still be there when you are gone!!!!   Gloomy thought but she is right honey.

Im ok not perfect but just about managing still having conflicting theories on my chiari, we now have registrar stating I have very restricted flow and ns saying I dont?????  Go to hospital again on the 4th July so will start again on this never ending merry go round!!!!!!!



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