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Chiari Bracelets

May 27, 2011 - 3 comments

A good friend of mine just made me a beautiful purple bracelet! I posted this on my facebook. He's offering to make more!

Dear family & friends~

Greetings! I hope that this letter finds you well! As many of you know, I was recently diagnosed with Arnold Chiari Malformation type 1. What on Earth is that, you ask? Well, it's hard to describe, but in a nutshell the back portion of my brain (the cerebellar tonsils) are lying too low in my fact, they are lying into my spinal column by 8mm. In the "normal" brain, the cerebellar tonsils lie above the opening to the spinal column. So what does this mean? Because there is a blockage in the spinal canal, the spinal fluid isn't flowing properly. This causes intense pressure headaches, dizziness, numbness, visual problems, back problems, speech issues...the list goes on.
There is no cure for ACM, however, there is a surgery that decompresses the spinal cord. I will spare you the gory details! After 4 years of my doctors telling me that my headaches are nothing more than just headaches, I finally have a diagnosis and a neurosurgeon who will be preforming decompression surgery on me on June 27th.
Raising awareness for Chiari Malformation has become extremely important to me. This disorder has affected my life in many ways. I wanted a bracelet that signifies Chiari awareness with the purple colors and ribbon. I asked a friend of mine, Chris Marinin, if he would make a bracelet for me. What he came up with took my breath away! He has offered to make more of these bracelets for me to sell for $20. That is only  the cost of materials and a $5 donation to a Chiari Malformation organization of my choice!

The bracelets are all sterling silver with 8mm deep puple beads (purple also stands for such issues as; lupus, pancreatic cancer, domestic violence, Alzheimers, Fibromyalgia, Chron's Disease & Colitis, Cystic Fibrosis).
If you are interested in purchasing one of these bracelets or for more information, please feel free to contact me!

Also, please feel free to check out these sites about Arnold Chiari Malformation:

Thank you!

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by niki3350, May 28, 2011
Oh steph this is just beautiful, I hope they sell well and well done for such a beautiful post.

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by meatsafe, May 29, 2011
Congratulations on finding a responsive NS and setting a date for surgery! I noticed in an old post that you mentioned Dr. Coumans - did you wind up scheduling treatment with him, or perhaps someone else in the Boston area? I am a random googler who stumbled on your journal: I hope to meet Dr. Coumans for a Chiari (7mm) consult in the near future and was wondering about your experience.

Congratulations again and best of luck with the surgery!

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by emza1910, May 29, 2011
How much in £ as I'm from uk. Would u even post 2 me?

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