Jun 23, 2011
I have had severe burning/tingling/pins & needles/brain zap sensations covering my head (entire scalp), face, and neck for several years. I have been to Dr. after Dr. (as you can read about in my profile) and after several failed attempts with many different medications - as of yesterday I am again on a new one. Most recently I was taking Gabapentin (took it until the prescription was out) and after no improvement, I've now been switched to Lyrica.
My (newest) Dr. tried to diagnose it initially as Occipital Neuralgia but it surpasses the occipital region. They know that it is nerve related but have no idea what is causing it. It happens from the time I wake up until the time I go to sleep (I've learned to cope as best as possible) but it effects my daily life as I'm sure you can imagine. When it gets really bad I want to rip my hair out and just lay in a dark room and try to sleep since that is the only thing that fully takes away the pain/sensations.
Long story short, have any of you experienced this sort of thing? Anyone on or have tried Lyrica? ANY feedback would be greatly appreciated. After 4 years, I would love some sort of piece of mind... but I have come to the realization that this will be a trial and error process.... just hope it doesn't take another 4+ years to figure out. I've almost forgotten what it feels like to feel "normal"