Jul 03, 2011
It's been almost 2 years since I stopped using LDN. I went through extensive testing to see if I had MS, and also tested for Mast Cell Disease ( Mastocytosis ). Nothing was conclusive. I still have numbness in the left side of my face, feet, and left hand, that comes and goes. I also still have intermittent severe pain in my thoracic and cervical spine, and migraines. BUT....I started B12 injections and that seems to be helping. I am supposed to inject 1 cc every two weeks, but sometimes if I wait that long the pain gets unbearable. Last time I thought I might have to go to the ER. I tried to wait the full 2 weeks between injections, and I won't do that again. Now I take my injection at the first sign of numbness returning or pain flaring up. I still can't work with my hands up above my waist tho' or I'll be sorry. Makes doing dishes and folding laundry difficult.
I sometimes think about starting up LDN therapy again. One of my fingers is starting to get crooked from RA and I'd like to nip that in the bud. But now that I've been diagnosed with BPD and PTSD I am leery of using any medication. I've been really stressed out lately and I don't want to do anything to increase anxiety. That seemed to be a problem for me on LDN in the past. I've had over 2 years to heal from the pain meds my Dr. RX'd so maybe I'm producing endogenous endorphins in adequate quantity. It's difficult to know, because with BPD I feel so flat. Hardly a good feeling ever. It wasn't just from the opiate withdrawl. That process was just aggravated by the BPD, hence the protracted withdraw.