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IBS AND UNEXPLAINED WEIGHT LOST "REALLY AFFRAID"

Sep 27, 2008 - 10 comments
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IBS

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weight lost

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diarrhea



I WAS DIAGNOED WITH IBS 2 WEEKS AGO. AFTER A YEAR OF DOING TEST. IT ALL STARTED WITH ABDOMINAL PAIN, UNDER MY BELLY BUTTON,AND UNDER MY RIB CAGE ( IT COULD BE ON THE RIGHT SIDE 1 DAY AND THEN ON THE LEFT OR MIDDLE.) BUT THE PAIN WOULD ALWAYS BE UNDER MY BELLY BUTTON. I HAD XRAYS,MRI,CATSCAN,ULTRASOUND,UPPER,& LOWER COLONOSCOPY,BLOOD WORK,STOOL STAMPLES.( IS THERE ANY OTHER TEST?) I HAVE HAD DIE PUT IN ME TO SEE IF MY ORGANS ARE WORKING RIGHT,EVERY TEST COMES BACK NORMAL. I GUESS I HAVE IBS WITH DIARRHEA. I'M READIND SOME OF THE STORIES & NOT MANY ARE SAYING "THEY'RE LOSING WEIGHT. ( WHAT'S WRONG WITH ME?)  MY G.I FOUND A PARASITE CALLED "HYPLOR"  TREATED ME FOR THAT,TO DAY WILL BE THE FIRST DAY WITHOUT ANY PILLS FOR THAT. HE PUT ME ON "DICYCLOMINE" (DOES IT WORK IBS?" I AM SCARED OF HOW MUCH WEIGHT I'M LOSING, SOMEONE SAID "IBS  IS A NICE WAY OF TELLING YOU,THAT YOU HAVE CANCER."THEN YOU HEAR "THERE IS A CURE AND THE THERE ISN'T A CURE." WHAT IS TRUE?  THEN YOU HEAR THERE'S A NEW TEST( IN THE UK) FOR IBS CALLED "CDSA"COMPREHENSNE DIGESTIVE STOOL ANALYSIS. IS THIS TEST HER IN THE USA?  IS THERE ANYWAY  A G,I DOCTOR CAN TELL FOR SURE IF YOU HAVE IBS?  SOMEONE TOLD ME " THEY TELL YOU ,YOU HAVE IBS IF THEY DONT KNOW EITHER." WHAT DO I BELIEVE ANYMORE? I CAME ACROSS THIS SITE AND IT SEEMS HERE I CAN GET THE REAL ANSWERS. WHO ELSE WOULD KNOW THE TRUTH BUT OTHER IBS PEOPLE. THANK YOU

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Avatar universal
by tm120, Sep 27, 2008
Hi.  I was diagnosed with IBS about 12 yrs ago.  I had alternating diarrehea and constipation iwth upsret stomacha, nausea and gas with bloating. Like you i had every test under the sun.  When they are unable to come up eith something like colits, etc. the fall back dignoses is IBS.  It is real and can include many symptoms, so dont dismiss that you have it. The key is to learn how to live with it and treat it, it took me a yr. to find out what my triggers were and how to have some control over it.   Many people are different and respond differently to it.  Some of your diarreha could have come from the H,pylori, ive had that twice.  When i had h.pylori i lost 20pounds and had nausea and diarrhea for months until i was diagnoed and treated.

What i recommend is to start taking Metimucil, over the counter fiber therapy treatment.  Take at least one glass daily and if you have diarrhea up to 3 glasses per day.  It helps with both constipation and diareha, it works ive been on it for 10 yrs.  Add more fiber rich foods to your diet, fiber is key.  Dairy will make diarrhea worse!!  A pill that helps with pain in stomach from the IBS is called Donnatal.  It works well at relaxing the interstines, helps spasms.  There is no cure all you can do is learn how to manage your disease.  Its not the end of the world, it will get better i promise.  Keep a journal of hwat you eat and your activities daily for a few months.  You will begin to notice what is setting you off in attacks.  Also STRESS is a major factor with this disease.  Many people laugh but it is.  When stressed out you will find yourself in the middle of an attack, be there done that.  You are not at higher risk for cancer you jsut have a bowel disease.  Many people have it and is more common than you can imagine.  I also have lymphacytic colitis and reflus so ive learned how to manage 3 diseases.  You will find you way.  REad some books on IBS, educate yourself and find yourself a godd GI doctor.  

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by zcandyman, Sep 27, 2008
Frist,I'll like to say "Thank You" You say "you can alternate between diarrhea & constipation." I have had nothing but diarrhea, No constipation at all. I don't know what I get ,is it upset stomach or A weaird feeling.There is times I feel nausea.( Dont like that) Some people tell me "IT isn't IBS." It could be "IBD" Why? They say "cause I'm losing weight."But like you said,whatever I have ,I have to learn to live with it and treat it. Whatever it is,It does bring tears to your eyes." I need to find out what my Trigger foods are.On some web sites they" eat smaller meals,but eat every 2 hrs." Is that true? Today is the 1st day without my PREPAC pills.(for the HPYLORI) Now I'm just on DICYCLOMINE for the IBS. I hope the diarrhea is from the HPYLOR. The diarrhea won't stop overnight? I will start on Metimucil. So I guess there is no cure if you been on Metimucil for 10yrs.And I will go out and get  DONNATAL (where do you get it? There goes my Dairy.Is that ice cream too? I will try Donnatal.Now I can look at life in A different way.Thank You.But I'm gonna get me A pad and keep A journal.But stress is gonna be A hard one to dael with,But I will find away to deal with it. Rightnow my Reg.doctor has me way stressed out,having an HIV test done.Wish doctors knew more about IBS.They say"don;t worry."But how can you not,untill you hear the answer,weither or not you have it.It's the waiting game.I have A good G.I doctor now.He listens to me.You made A change in my life,Thank you so much.Maybe we could stay in touch.It's nice to have someone to talk to ,who under stands IBS. Have you ever heard of "CDSA"COMPREHENSNE  DIGESTIVE STOOL ANALYSIS? BEST WISHES WITH YOU.THANK YOU AGAIN

Avatar universal
by man_of_honour11, Feb 06, 2009
Hi, I just came accross your posts looking for " IBS and weight loss " in Google. I'm a 22 year old guy and I've gone through all those tests that you have gone through....I've lost about 28 pounds in 5 months with diarrhea and constipation. I also got an HIV test done....the single day that I had to wait for the result felt like a year, I know it can be stressful. Finally, I'm beginning to accept that it is IBS because EVERYTHING else is absolutely normal. I somehow don't believe in taking so many medicines for months; like you have probably experienced, they don't help ( I'm not talking about Metimucil ). I thought of asking you if you have found the reason behind the weight loss. I was reading about this book called " Eating for IBS ".....I read a few reviews on Amazon and there I found a couple of people who had lost weight. So I guess I will get the book soon but if you have anything to share, please get in touch, I'll be very thankful!

Avatar universal
by solidtattoo, May 26, 2011
wow im going through all of this right now the testing and every thing its like i wrote your post man i fell your pain cause all of my tests are normal the only test my doctor has not done yet is the colinoscopy but from what im reading im in the same boat as you all are i have lost 20 pounds over the last 10 months and look emaciated in the face and was brginig to freak out a little bit man thank you guys so much for posting these for others to read i think we should all stay in touch to help track our progress because my wife is plumb tiered of hearing about it and thinks im a hypocondreac or some thing now i got proof im not the only one

Avatar universal
by dedmon, Apr 14, 2014
Hi Guys. I've recently diagnosed with IBS the first time with diarrhea then mixed and now some constipation. I've lost 26 pounds in two months then the weight kept steady. Many test done ( nothing of comprehensive test) , I went on diet and many medications taken as well. After all I feel better and sometimes I have some episodes of D without any major consequences but with no weight recovery.
I would like to know what happened to any of you after all these years in the past. Thank you very much.

Avatar universal
by flatfeetrunn, Mar 01, 2016
So we're all in the same boat I have all these symptoms but no insurance I'm working on getting it. I hate food at the moment anything goes right through I've been this way since I was a kid my mom never really bothered she has it as well. As a runner it really messes with you wish a port-a-potty was attached to my behind. I try eating very healthy so many vegetables and fruits yet there she is lurking in the dark. Usually around night time it gets worse pretty bad I might say. As a teen I was given so many medicines prozac codeine metamucil flouride anti anxiety meds always two bottles of pepto sometimes one for when id get constipated and Nada.  Sometimes when I fast for a while and then carefully add foods helps well for about two weeks then back to diarrhea. I'm 22 atm

Avatar universal
by Jennyyybabe, Aug 09, 2017
I'm going through the same thing... pain in my tummy constantly,have had every test just about and all normal, tried over 15 prescriptions, bad side effects and now since may I have lost 42 lbs. My psychologist  (I see one cuz the Drs think it's in my head) but she's worried about the weight lost. But my gi Dr doesn't seem worried. I can't eat. Everything makes me sick and throw up. I'm on my wits end... and all this started because I had gallstones and had my gallbladder removed. What else could cause thw bad tummy pains allllllllll the time? It's affecting my work and every day activities... any more suggestions that no ones thought about? Has anyone had their sphincter of oddie checked? Thx everyone

Avatar universal
by Helpmygut1234, Jan 23, 2018
This is all very interesting. I have so many of the same symptoms. I am very nauseated every day. I have very bad cramping. I have lost my appetite. Since August I have lost 40 lb and this is January. I feel very weak and I feel like I've lost all of my strength. The big difference I have is I do not have diarrhea I am severely constipated. I've been this way all my life. About 4 years ago I had my first colonoscopy. They found a lot of infection in my large intestines they cleared up the infection but I continue to have the same problems. I've been to several doctors and on Mini meds. It's nothing for me to go 5 or 6 weeks without my bowels moving. Since September my symptoms have just gotten worse. I am miserable . I went to my family doctor today and she did blood test and they all came out normal. That's just crazy to me. I have an appointment with a different GI doctor next week. Here we go again from the beginning.Please say a prayer for me. I'm very scared of what I will find out eventually.

Avatar universal
by Rhiannon56, May 06, 2018
Hi, I am frightened to. I hope this thread is still active. Looks like many of posts old. I too, have suffered from Chronic constipation. Had to be given enemas when I was a child. In my twenties, thirties and forties, somehow I was able to manage it..just remember straining alot. Fiber from Foods did little to help, just make things worse. Gastro said "try Benefiber" just made me go all day with small hard pellets, so have up on that. Then had to start taking opiods at the age of 49, from severe degenative back disease along with muscle relaxers, and Naproxen 500. Pain mgt Doctor out me on Senna-Lax and Movantik, the Senna-Lax worked, but not Movantik. Just made me anxious. Linzess did nothing. Finally had enough and stopped opiods cold turkey last April. Along with muscle relaxers, Naproxen, but have not been the same since. It's been over a year now, and going off the Opiods shut my Digestive system down. I can't eat anything, even the smallest meal without abdominal pain and cramping. Gadtros have been of no help..Just dismissive of me. Have had numerous ER visits for impaction. Have tried everything. Even the Senna which worked great for seven years no longer working as well. At a loss of what to do. Bentyl and Levsin have done little for abdominal pain. I have gone from 186 pounds at 5'5 to 110 pounds. I am severly underweight and just keep losing. I feel exhausted, depressed, scared, hopeless, like my days are numbered. I just want my life back where I could eat Pizza once in a while or Tacos, Ice cream, without fear of cramping. Doctor's and Gastroenterologist seem unphased by severe weight loss. They don't care. Recent colonoscopy found 2 polyps, non-cancerous. Yesterday, managed bowel movements but strained alot, and most of it looked like (mud/sludge). Have not had bowel movement in seven days, just a little yesterda. Last night took Senna-Lax..this morning..no BM, just bleeding in toilet boil from internal hemmorrhoids, that colon and Rectal Surgeon said she could not perform surgery for due to "rectal folds". Just feeling overwhelmed by all this. Having third opinion by Gastro in mid April, but running out of hope.

Avatar universal
by Ddoc1013, May 12, 2018
Good morning all, I am going through IBS symptoms now with my son. Going through the testing now. Labs, upper and lower GI testing, CatScan, MRI, etc. So far, all is normal. Unexplained weight loss over 30 lbs in 6 months. Stomach bothers him all the time. He feels like he is wasting away. He is anxious and depressed. He is 18. He was 165 when he finished high school. He is down to 132. He forces himself to eat. He use to love food, what teenager doesn't.  He has some diarrhea some days and some constipation some days. He comes out of his bedroom about every 2-3 hours saying he has to eat right now, Then it's a whole ordeal, Nothing's appetizing, I feel sick, I can't eat, my stomach hurts. Then he forces a small amount, usually scrambled eggs. Then He belches a lot and feels so terrible In his stomach. He is on Linzess (doesn't help) and Omeprazole. I know we need counseling and a dietitian. Still waitin on all the lab work from endocrinologist because my husband's cousins have a lot of thyroid diseases in thier family. Anyway, I feel for all of you and hope for a positive outcome and manageable lifestyle. Prayer still is and always will be the best thing to do.

I just ordered joint supplements for myself through a website called STOPAGINGNOW. I just started them about two weeks now. They have everything, HEALTHY VITAMINS AND SUPPLEMENTS. As soon as my son's labs come back If all is normal,  I am going to order from this website. I urge everyone to read about this website. The President of this company is Joshua Corn. He does research and has been helping people for over 20 years. People swear by his products. A+BBB RATING AMONG OTHER REPUTABLE RATINGS. 365 day return policy. They have professional medical staff to guide you to the right products for your problems. The website says exactly what is in every product and explains why it is helpful. I have nothing to do with this website but I was intrigued by what I read and will try anything for my son. It can't hurt because everything is all natural with no side effects. I am thankful that I stumbled onto this website. Anyway, Good luck to everyone. God Bless

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