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Jul 27, 2011 - 1 comments



Multiple Sclerosis








muscle twitching

for sometime now i had what most of you had...headaches, pain, dizziness, muscle spasms, tingling on my hands, was was i ever going to know anything about MS. Its not something people talk about. Until the doctor mentioned it, I had no clear idea of what it was!

Today, i got an answer to all my questions. I am not crazy! i was not making this up for attention (i heard that a few times) I have MS. Today i am able to put the dots on my I's. Its a relief to know. I worried so much for over 8 months. The first MRI didnt show many spots, so I had to wait the longest 6 months (8 cause i didnt schedule it on time) to get the answer.

Scared? of course i am. I think if my kids. I don't want them to HAVE to take care of me. I don't want to be a burden for anyone. For now, i am good. I am able to be me and do my own thing. Treatment? idk yet! Neuro will have to tell when i see him.

For now, I accept this. I do know I trust the Lord, he doesn't make mistakes. Something good will HAVE to come out of this. Something that I will really be looking for LOL (its hiding somewhere).

I will be coming around here more often.


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559187 tn?1330782856
by Sarahsmom46, Jul 28, 2011

I'm sorry to hear you were diagnosed with MS.  It is sad yet cathartic because like you said, you don't want to ever be a burden and the upside is that at least now you know what you are dealing with.  

Several of us got together in Kentucky last weekend and attended an annual conference that the university of KY MS center puts on and learned so much about the future of MS therapies.  This was my first time attending an MS conference and let me tell you that it was very uplifting and encouraging.  I can see the day in the not so distant future that the severe disabilities that most peiple think of when they hear you have MS may end up being a footnote in the annals on the History of MS.  

I hope you will be positive too about your future and it sounds to me like you have already chose the positive path to embark on this journey.  

I wish you much patience and strength as you get used to this new reality and hope that your treatment will be quickly planned and started.  The quicker you get on a medication the quicker you can keep that positive momentum going.  

This is a great forum as you already know and we will all be happy to help in any way.  One day down the road, you will be able to help another person who was just diagnosed too.  That is what makes this forum such a good place to be.  Take care.


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